I was diagnosed in June and my Crohn’s is vvv aggressive. Pretty much destroyed my body in a matter of weeks. Fistulas, abscesses, surgeries, hospital stays, 4 months w/o solid food.😅 but thankfully all is well atm and I’m starting to get out and about. I also currently have an ileostomy that’ll hopefully be reversed before the summer. This one relapse will ultimately take away a whole year of my life. And I’m still trying to process the whole “chronic incurable” aspect of it all
I was diagnosed at 11 after years of crippling pain, I tried every medication in the book and finally found one that worked called remicade however three infusions in I had a severe allergic reaction, after that I tried humera but couldn’t do the injections due to severe anxiety. I then got in a trial for a now FDA approved drug called entyvio! I have been in remission for two years, but now experience pain and inflammation in other areas that are not covered by my medication. I was diagnosed super young so I never had anyone my age who understood me, I am happy to talk with anyone about this further💕
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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Ligerato
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Hi, I’m new to this app. I just stumbled across it and would love to hear about your journeys
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Chronic Generalized pain
Generalized pain
Anxiety (Including GAD)
Diarrhea
Vedolizumab
Crohn's Disease (IBD) Inflammatory Bowel Disease
Tokyo
368d
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s.jco
366d
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wish_i_was_debonair
353d
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Chucky62
125d
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision