coolhippieaunt

248d

i have endometriosis, POTS, hashimotos hypothyroidism, & celiac & now the Drs. want to run tests for lupus. i know it’s common to have autoimmune diseases overlap but not all of these are autoimmune and i’ve never gotten sufficient treatment or causation explanations. i typically just get told to go on a new medication and that my blood work looks weird but they don’t know what it means. i’ve never seen a doctor who seems to understand the connection between these conditions well enough to treat me. i’ve gone to specialists in each field- endocrinology, gynecology, cardiology, neurology, etc. but i just keep getting bounced around from specialist to specialist without any real help. i’m feeling really down & would appreciate any encouragement, tips, recommendations or support :( thanks guys <3

Postural Orthostatic Tachycardia Syndrome (POTS)

Hypothyroidism

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  • coolhippieaunt

    248d

    feel like i should clarify- i’m 22 and i started having problems when i was 7 so i’ve seen like every doctor in indiana basically. but please recommend any you know of that you love anywhere in the world. ya girl is desperate to feel better

  • DieselWeasel

    244d

    I would suggest finding the head of cardiology at a popular hospital. For example here in Connecticut it's Yale. Ask the cardiologist to make you a case study. They will gather a team and go over your records trying to find a connection and a treatment plan. You have to be persistent no matter how frustrating it is. It took me three hospitals and many doctors to even get my pots diagnosis.

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