I have chilblain skin lupus that isn’t responding to my current medication regimen. I am also working with functional medicine on dietary / other options. My hematologist is testing me for cryoglobulinemia and I see it can happen with SLE, RA, etc. Does anyone else have cryoglobulinemia ? What medications have worked for you?

Systemic Lupus Erythematosus (SLE)

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  • NicoleAS


    I have a compounding cream that has a vasodilator BP med in it. I also was prescribed viagra as an off label use to help with blood flow.

  • karinad


    Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

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