Stories
Privacy
Download
See Alike in...
Alike App
Browser
661d
Has anyone been diagnosed with lupus for years to have doctor say you may not have it?
1
4
Share
Skin rash
Systemic Lupus Erythematosus (SLE)
advertisement
573d
You can have false negatives and false positives lupus pretending it is so many different things doctors take into account symptoms and blood work. The one doctor after years after being told yes. I would question that. I was send to one doctor after being diagnosed and came to the door of the exam room didn't introduce himself look at me and said you don't have lupus I know what lupus patients look like. I got up told him if he said another word to me I would stick him in one of the cabinets Go to a doctor you are comfortable with.
0
640d
Not for lupus specifically. Mine was RA. I was told I probably had RA, see a pain manager and deal with it. 4yrs later and actual testing by a specialist, no RA đ¤ˇââď¸ He told me it's common with inflammation based disorders because of all the symptom overlap. Blood work doesn't usually pinpoint the exact problem, they need symptoms too. So it is wishy washy territory with new studies being done every year.
655d
Yes! I had my ANA tested back in high school (2015) and had been experiencing symptoms since 2010 and it came back normal. But since about 2017 Iâve developed the butterfly rash (unknowingly) and saw a dermatologist for my horrible acne and she diagnosed me with lupus. I told her I was already tested and it was normal and she said if I wasnât currently having a flair, it wouldnât show up. And now Iâll be seeing a rheumatologist later this month.
@Rowboat Wait I kinda misunderstood your question. I wasnât previously diagnosed but thatâs my story with doctors saying I donât have it.
â This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness⢠with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions