See Alike in...

Alike App

Browser

Struggling with Diabetes Insipidus: Medications and Sodium Levels

rezz_berry

644d

Anyone with Diabetes Insipidus (DI) or anyone out there that has Complex Central DI? I am wondering what meds you take, What your struggles are? My struggle is with me forcing to drink a lot of water to make sure my sodium isn’t too high. (160’s been the highest for me) I also cannot lower sodium too fast bc once in the hospital, the nurses did with IV, and i was an 8 year old hallucinating, very scary. Average sodium is 155ish for a “normal” level. Major med i take is Desmopressin. Used to take nose spray but endocrinologist changed it to tablet to be more effective. I am on a bunch of other meds as well, but Desmo is one i NEED.

0

6

6

Desmopressin

Levothyroxine Sodium

Dehydration

Avoid sodium

Diabetes Insipidus (DI)

View all
Top reply
    • RoseVirgo

      517d

      I take desmopressin as well.

      0

      Reply
      Chat
    • RoseVirgo

      517d

      I take desmopressin as well.

      0

      Reply
    • RoseVirgo

      536d

      My biggest struggle is managing my water intake,as I don’t have a thirst mechanism.

      0

      Reply
      • rezz_berry

        526d

        @RoseVirgo Ugh same! I really have to force myself once i start getting dehydration symptoms

        0

        Reply
    • StripedTurtle

      644d

      What?! My endo said the nasal is more effective over the pills. DI is by far my most inconsistent and frustrating conditions. I feel its always up and down and all over the place, so frustrating!!

      0

      Reply
      • rezz_berry

        644d

        @StripedTurtle I did the nose spray age 8-10ish so maybe it was because it was done incorrectly? Ex. not blowing my nose, ect lol, but my endocrinologist doctor changed it and i’ve been taking the pill for years and it has been working well! But yes it is extremely frustrating, growing up with it for about 15 years i am totally over it

        0

        Reply
        • Peanut1T

          545d

          @rezz_berry I've lived with Diabetes Insipidus since I was 7 and I took the spray in my childhood, but it kept giving me staph infections and my endocrinologist changed to the DDAVP (Desmopressin Acetate). I'm in my 40's now and have to take 4 a day. It works much better for me, than the spray did.

          0

          Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion