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Traumatoad

705d

What happens when you isolate an extrovert? After a solid year of sensory aversion to sounds and light, I am used to being home alone in silence. I am so lonely and losing my sense of purpose. Making and keeping friends is harder after TBI.

Top reply
    • TexAss

      607d

      @CreativC I say I took leaps and bounds every 5-10 years. It's very important to not give up! I'm at 35 years recovery from TBI at 3 years old and still making progress in many aspects in life. I wow myself with my abilities when I consume a lot of marijuana and calm my muscle spasticity and can hit a ball for my dog really far now. I loved playing when I was younger but never got the hang of the hand eye coordination without many years of practice and helping others realize my muscle shakes were not anxiety.

    • Calamity_Pain

      700d

      This isn’t just me????? I thought this was just my ptsd anxiety and I’m sure that contributes but really? I didn’t realize other extroverts with tbi need serious recovery time.

      • CreativC

        699d

        @Calamity_Pain the first year is the hardest & most important as far as re-learning goes. It gets easier. Stay hopeful, recovery is possible!

        • TexAss

          607d

          @CreativC I say I took leaps and bounds every 5-10 years. It's very important to not give up! I'm at 35 years recovery from TBI at 3 years old and still making progress in many aspects in life. I wow myself with my abilities when I consume a lot of marijuana and calm my muscle spasticity and can hit a ball for my dog really far now. I loved playing when I was younger but never got the hang of the hand eye coordination without many years of practice and helping others realize my muscle shakes were not anxiety.

    • crazysnakelady

      701d

      I feel that. I wish I had something useful to tell you. But for me it's been very much the same. Lonely and isolated. Just enough here to seem OK, just far enough gone to lose myself. And now I can't even just go out in nature anymore. The tbi caused my autonomic nervous system function to be haywire and its particularly affected how my heart functions. Among other things, but that really took away my outlet. I used to walk/jog miles with my dog everyday. Now, just Last week, I stood up normally and ended up admitted to the hospital because i had a bad Orthostatic episode induce a run of 200+bpm tachycardia and my heart decided 'who needs a rythm!' and i required emergency intervention x hospital stay so i didnt freaking die. Yeah. From standing up. It's so lonely here. No one wants to stay around the awkward slow girl with heart problems. People walk on eggshells when i tell them the truth. It doesn't help that I have few teeth left and a scar on my face from my accident. I can only use one eye at a time so sometimes one wanders. That is why I've got my snakes. They don't judge anybody and don't care if I say something wrong or look a little rough or have to sit down. Heck even if I'm in the hospital for a couple days i know they are ok. They just look right through you in an almost a comfortable way to me now. I think it's because that's the only way I know how to look at myself anymore. When i can find her. Its easy to get lost spending endless hours alone in a dim quiet room full of snakes. Told ya I'm weird. Sorry in advance.

      • TexAss

        607d

        @crazysnakelady What kind of snakes do you have? I had a rosy boa for about 20 years. She was great. Her name was Vinyl because her skin was so pretty and shiny and reminded me of the fabric. I see wild snakes around me of similar look and shape and witnessed one eating a baby copperhead. It's like Vinyl out here protecting me💕

    • CreativC

      701d

      Hey there... Sorry you're going through this. Trying not to give medical advice, so I can only speak for myself.... Im not an extrovert, as I recharge alone, but I need people & flourish with connections... Also finding it hard to find people, and esp ones who accept me, and I would have to say, the first year was the roughest... but it's been 3 years now... And when I was going through a sense of lack of purpose, which I think in general can apply to the whole human species, I learned to love myself. And then fell in love. And reconnected w my extended family over social media. But in the beginning I had to write everything down, and remember to read it... was having migraines for days, mood swings, confusion, outbursts... It took a lot of work, and those things are of the past.... But to this day have to talk myself through loud noises and developing healthy daily functions. Or, what seems loud to me, I should say... As going to the movie theater requires ear plugs now, you know? If I go I usually don't make it through the whole thing without leaving for a sanity break. 😂 Anyhow... I had to accept my oddities, learn to use an array of coping skills, express myself creatively, create a place where I feel safe, and re-learn social skills along w self regulation... W the help of adaptive devices like earplugs. It's a journey and it's not fair. I do think the more we buck against it the harder we make it for ourselves though, it's the difference between suffering and pain. Hope that made sense. Best wishes along your journey & hope this helps.

      • TexAss

        607d

        @CreativC ❤️ My TBI journey started 35 years ago, when I was 3. I agree, if there isn't modifications regarding the injuries it's suffering. It is hard for me to say the first year was the hardest, more than the first years were the hardest for me. I don't remember anything but the few stories other people told me. It seems I can keep up with people my age now, but schedules and lists definitely make us all more efficient. I recently started going through the process for disability and with the focus on memorization I have an increased concern that it will be those with similar conditions of TBIs that experience things like dementia at an earlier rate. My soon-to-be Ex knows this and has been using my medical history against me with assumed intelligence on my condition in every spectrum, my future, and my abilities in order to control me. I am only 38, I feel I have many good years still but in saying I need the support from disability, now he wants to paint the picture as if I'm on a decline and can't manage my own life or otherwise I'm lying and the original condition doesn't exist and with the help of insufficient doctors, lawyers, and administrators that's how my case was filed with the disability office. I'm so distraught that I thought for the longest time that I did bounce back well, but now looking back I really could have thrived so much more with the help that was never offered. To reach out to more people and not feel so isolated I've been joining these support groups online for my conditions, like here and on Facebook.

    • Hartley

      704d

      I agree it is harder to make and keep friends after. I have sensory issues too and some days they’re more sensitive than others. I’ve had my traumatic brain injury for 16 years and things have been hard. You have an important purpose in life and things will get better.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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