JustRachelle

22d

What’s everyone’s treatment plan for POTS? I’m on Zebata but clearly it isn’t working. So is there anything I should bring up to my doctor regarding treatment. I’m still tachycardia when I’m up. Plus other symptoms 🤦🏽‍♀️

Postural Orthostatic Tachycardia Syndrome (POTS)

Tachycardia

Propranolol

Ivabradine

Chronic Tachycardia

Ketotifen

Fludrocortisone

Midodrine

Cyanocobalamin

Famotidine

Metoprolol

View all
  • tallgirl22

    22d

    When I was more tachycardic I took propranolol which had minimal side effects for me but I also have low blood pressure so being on it wasnt a good fix for me long term

    • JustRachelle

      22d

      what do you do for it now?

      • tallgirl22

        17d

        I get iv fluids every day now

  • Zemi

    22d

    Zebeta worked in the beginning but it didn't last long. I was still tachycardic. The only medication that truly works for me is Corlanor (Ivabradine). It lowers heart rate without lowering blood pressure so it's good for people that already have lower blood pressure, like me. As long as I keep my fluid intake up, Corlanor made my quality of life better. I can shower, cook, and even walk the dog without any issues. Didn't experience any side effects and it's commonly used for POTS patients now.

    • JustRachelle

      22d

      that’s sooo good! are you able to work now that you’re on this medication?

      • Zemi

        12d

        I don't work due to chronic back pain. I'm on disability. But I regained my independence for daily tasks and errands.

  • BlondeGirl1216

    22d

    Ivabradine and Propranolol for my tachycardia but they don't seem to be very effective. Ketotifen, Famotidine and Fexofenadine for the Mast cell Activation syndrome. They are antihistamines. Melatonin for my insominia. Salt supplements like Vitassium capsules to help with blood pressure. These are really useful in summer. Alongside that I take a fewsupplements/vitamins too.

  • Ghost1211

    22d

    I'm on propranolol and healthier lifestyle choices

    • JustRachelle

      22d

      what are your healthy lifestyle changes if you don’t mind me asking.

  • teiovex

    16d

    I take ivabradine (corlanor) and it works great, I had tried propranolol and metoprolol as well and neither worked as much but do for many others.

  • Ghost1211

    16d

    cutting out majority of soda intake replacing with water daily exercise even if it's just pacing the house

  • Ghost1211

    16d

    Also cutting salts for me personally helped too

  • Connie_Rose

    12d

    I've just been put on Ivabradine and its been helping me tones so far! My cardiologist also recommended I drink electrolytes (i've started having a science in sport tablet a day!) And he also recommended I try tilt training, he said although theres not much evidence towards it he thinks its still worth a try. Hope any of this is helpful:)

  • LuceH

    12d

    I'm also on Ivabradine, I also take Midodrine and when I have an 'episode' I take hyoscine hydrobromide (I find it helps cut down the time it takes for my body to stabilise by almost half if I take it as soon as the episode hits) - I will also just disclose by POTS diagnosis has been questioned a lot and no one can seem to agree on an answer or give a suitable alternative to what it could be haha

  • CoffeeBeanC

    12d

    Propranolol brought my heart rate down amazingly. I used to rest at 80 and jump to 150, but now I rest at 65 and usually don't jump, but it sometimes goes up by about 10bpm. I'm also on fludrocortisone for sodium retention, and take salt pills occasionally

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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