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724d
Hey, guys! I have been diagnosed with this recently, but I actually think it is only a small part of what I think I have…Elhers Danlos Syndrome. I don’t have a single idea on how to get started with getting testing or a diagnosis for this. Do any of you have advice?
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Ankylosing Spondylitis (AS)
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712d
My rheumy was the one that told me I had EDS, but it came several years after my AS diagnosis.
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723d
hi!! message me! i have both as and eds type 3!! <3
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721d
@sickgoose Me too!
You’ve been to a rheumatologist right ? If your rheumatologist is solid they should be able to suss it out . Ask lots of questions and be your own advocate . I’ve had autoimmune disease for 17 years and I’ve always pressed for information and testing .
I've never heard of that.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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