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Hey Guys!!! I heard about this app. and I figured why not, I am at a dead end. This medical search is actually about my (soon to be) 6 year old daughter Carsyn. Carsyn was born in January of 2017. Carsyn was a full term baby, born at 39 weeks, 7lbs 10oz. No pregnancy concerns.. and seemed to be a normal baby, except... when she was 1.5 months old Carsyn had and was admitted for 3 "seizure-like-activities". No one could explain to us why. Since then, Carsyn has had a wide range of issues that keep popping up. Severe motion sickness started around 1 year old... and gradually got worse... to the point of, 5 minute in a car she will throw up. We go nowhere...within the past 2 years we have suffered with: Chronic illnesses such as Chronic Sinus Infections, Chronic Bronchitis, Chronic Ear Infections, and UTIs... she takes an antibiotic almost every other month and a steroid almost every month (between September and April), along with headaches 3-4x a week, brain MRI showed a small pineal cyst, elevated platelets since birth... not extreme but normal range they said is (150-450) and she is always between 460-500... her sleep has always been poor, with frequent awakenings... she is always fatigued... they said she needs her tonsils and adenoids out in May, which I am terribly afraid to do... She is always pale and very purple under her eyes which they said is usually caused by allergies... but, allergy testing was negative... we have saw Hematology which had no concerns about her platelets and Immunology where the Immune panels pretty much checked out... her IGA was elevated once but came back down to normal. Her behavior the past 2 years is driving me completely insane... her emotional meltdowns are daily... and in 1 year she had what I would assume to be "rapid weight gain"... of at-least 20 pounds. My next step is to schedule with Genetics but they are 4-5 months booked out currently which isn't bad... but they are an hour and 15 minutes away from us and with the car sickness... it is going to be brutal.
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Acute lethargy
Common variable immunodeficiency
Psychogenic non epileptic seizure
Thrombocytosis
Weight gain
Motion sickness
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425d
I’m so sorry 🙏 must be so hard on your daughter and your whole family
I should also add she has Diagnosed Asthma, and 2 warts on her fingers that won't go away!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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