AutFallsAlot

118d

Does anyone else hold a lot of anger towards receiving their diagnosis? I was diagnosed with Fibromyalgia at the end of last year and while having a name to the pain is great I am finding myself really angry about having to ask for help.

Fibromyalgia (FM)

Chronic Generalized pain

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  • xe

    118d

    It could be a part of the grieving cycle when realizing/being diagnosed or accepting one is chronically ill. I’m happy I have the diagnosis - I’m more mad my GP didn’t believe in fibromyalgia or helping me then my rheumatologist put it on my chart without telling me at first. 🤦 I think of a diagnosis as an explanation for things which is helpful instead of being lost and worried like I was before. It’s okay to be angry about asking for help and dealing with this. It’s not easy! Your reaction is valid and so are your feelings.

  • BellzH

    118d

    At first yes, because I realized I was going to be dealing with this for the rest of my life and there wasn't much doctors are /were going to do about it.

  • Doglover25006

    118d

    I was diagnosed about 3 years ago and spent the first 2 years being angry and sad and terrified that I would continue to get worse and would never get my life back. And that grieving process is important. Fibromyalgia will change every aspect of your life, but not all of the changes are bad. Fibromyalgia forced me to take time to rest and pace myself after spending my entire life trying to run away from my own thoughts. I’m now facing them (with a therapist) and healing. Fibromyalgia forces me to eat well and sleep well. It forces me to get outside for some sunlight and vitamin d. It forces me to do light exercise. It forces me to reduce stress. All things we should be doing with or without fibro to be at our best. My limited energy forces me to choose how I spend my time and I no longer say yes to things I don’t want to do. I focus on what brings joy and purpose to my life. I learned to listen to my body and respect my body just as it is while working to make it healthier and stronger. It is a very long and almost impossible journey to learn to love your fibromyalgia, but it is possible. I still have my days where I am mad or frustrated or sad about some aspect of my fibro and how it’s impacting me that day, but I am honestly grateful for my diagnosis most of the time. DM me anytime if you want to talk. I’m happy to listen or to share more of my story and how I got to loving my fibro if that’s helpful.

    • xe

      118d

      I completely relate to this. I never paced myself before and fibromyalgia changed that and forced me to in a good way. Thanks for sharing.

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