Looking for alternative treatments for hEDS

Routine iv hydration has helped me so much and swimming has been my go to way to exercise

I haven’t found any pt that helps it all just makes my body hurt worse but you have to jump through hoops for the insurance

Honestly if you have the facilities near you, look into aquatic therapy!! Way less painful but still very strengthening due to natural water resistance.

Oh I didn't even realise that's what was happening honestly I was sent to physio but haven't heard back in like 3 years lol medical trauma means I'm not likely to chase it!

Pt has only ever helped me with surgery recovery, none of the other/chronic stuff

Alexander Technique could be helpful for understanding posture and Qi Gong helps with reducing falls and injuries, if the pain continues maybe a Rheumatologist could look further into why that is.

If you’re not in ‘ehlers danlos syndrome and the cusack protocol’ group on Facebook you should join. There’s a whole supplements/vitamins plan that helps all aspects of EDS and there’s supplements on there that can help CFS.

I’m about to start PT for my ankle, I have never had a good experience with PT, it always makes the pain worse. I’m trying a new place so fingers crossed they have some EDS knowledge.