Scijoe63

393d

Where is the most research being conducted for fibromyalgia—mayo, Johns Hopkins, Cleveland, etc. I’m tired of jumping from doctor to doctor. I’m willing to travel, be poked and prodded, ANYTHING. I need ANSWERS!

Fibromyalgia (FM)

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  • Scarlettrose

    393d

    Following lol

  • Scijoe63

    393d

    Yea, I’ve been looking for months. Nothing yet…

  • AngelBehr

    393d

    Following

  • Chel

    389d

    Following

  • MamaLaura62

    380d

    Sadly I have dealt with this for 23 years and not one Dr, not one Specialist and not one Counselor has had any answers for me. I learn more from the people who are living with this than what I have learned from the medical field. Their favorite phrase is Learn to Manage it. 😥

  • Dsparda

    379d

    There’s no back/spine (or medically whatever they’re called) doctors where I live so I had to travel to Denver and stay there for a week. Jus for the doctor to tap my knee, listen to some symptoms and end the visit after, no joke, 5 minutes with the words- “seems you have fibromyalgia. It’s incurable but it is manageable. It’s going to be a lifelong battle but you will learn to manage it. Try physical therapy. Thank you, have a good one.” I don’t understand medical professionals and their indifference/lack of knowledge/rejection of fibro. I’m sorry, I wish I had the answers for you :(

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