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Net Specialist vs Family Doctor: Who to Follow?

Ladybugs

720d

Does everyone see Net Specialist or are you following by your family doctor? Thank you

0

17

17

Neuroendocrine (Carcinoid) Tumors

Neoplasms of Unspecified Nature

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    • MTB1960

      681d

      @TriptychWitch so how are you doing ? Did you have your surgery ? If so I hope it went well How long ago where you diagnosed ? What stage and grade are you ?

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    • TriptychWitch

      700d

      I am followed by an endocrinologist, oncologist and primary care doctor. I also have a team consisting of surgeon, gi doc, endocrinologist and net specialist in another state when surgeries have to happen. I use my primary care doc basically to gather all my records from all the different doctors into one place so my complete medical history is there.

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      • MTB1960

        681d

        @TriptychWitch so how are you doing ? Did you have your surgery ? If so I hope it went well How long ago where you diagnosed ? What stage and grade are you ?

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    • MTB1960

      710d

      What grade? Ki67? They can’t remove , so you have to have injections,?

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    • Dragonrollz

      713d

      I see oncology, gi, general surgeon, colorectal surgeon & getting referred out to UCLA if my insurance ever sends out the letter of agreement 😅😅

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      • MTB1960

        710d

        @Dragonrollz what was your NET diagnosis ?

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        • Dragonrollz

          710d

          @MTB1960 I have colorectal…. Sitting nicely at the borderline which my doctors said isn’t normal but what can ya do 🤷🏻‍♀️

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      • MTB1960

        711d

        @Dragonrollz isn’t it scary to have to wait for insurance approval ?

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        • Dragonrollz

          711d

          @MTB1960 I think it’s more annoying than scary 😅😅 I have 4 specialist telling me I have to resect my rectum but I feel like my life is stuck on pause until the insurance company complies & I have 3 offices calling them 🤦🏻‍♀️🤦🏻‍♀️ like can we get this out of me already? Was your experience like that too??

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    • MTB1960

      720d

      Seeing my Gi ( which is a waste ) I have a GI NET I then followed up with a UCSF ( small/low grade ) tumor specialist and an oncologist as well

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      • Ladybugs

        719d

        @MTB1960 Thank you

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    • MTB1960

      720d

      ✋

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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