Living with Veds: The Struggle of Being a Patient Instead of a Nurse

Virtual hugs. I worry everyday my husband is going to get fed up with my psychotic behavior lol and leave me. If I could get away from me I know I would. This disease controls our lives. I am praying for you 🙏

Sending you virtual hugs❤️. It makes sense you feel the way you do. Your battles are great and the fear and obstacles you have living with your condition are very real. It's hard to get people to understand. It's lonely. It's isolating. And you often don't know what is around the corner. You do not have to make everything seem great. You may not have everyone in your life you once did and perhaps you don't feel heard and maybe it's sometimes by very important people to you. But you very much exist! And you very much are important! And you very much are amazing! You battle through hell every day and you reached out here when you needed some support. I understand being anxious. It makes sense. Trust me though, there are people who will come around. You can build a support system. Perhaps you'll find some other chronically ill people in your area or a support group near you. For now, maybe virtual events could help you feel less isolated. Or feel free to start with PMing me. At any rate, you will find your tribe as they say.i understand your loneliness. Just hang in honey. It may not get better but you may feel better. I say that. Your illness won't go away but you can find ways to accept it and to find joy and moments of gratitude and happiness. 🤗