Stories
Privacy
Download
See Alike in...
Alike App
Browser
702d
When where you diagnosed with fibromyalgia?
1
25
Share
Psychogenic non epileptic seizure
Fibromyalgia (FM)
Rheumatoid Arthritis (RA)
Achalasia
Generalized pain
Depression
Lethargy
advertisement
686d
I was 23 when I was diagnosed by a rheumatologist.
0
I was diagnosed 10 years ago at age 21
@CoffeeAndDogs š so young...
I was 28 when diagnosed, but I had been suffering since childhood.
696d
2014 at 15 years old. Was also diagnosed with Takayasu's Arteritis and rheumatoid arthritis.
At first by a rheumatologist at my university in 2018, but I had already suspected fibro from my own research into my symptoms then was diagnosed again by 3 more rheumatologists since then
697d
Mine was kind of an accident. I see a neurologist because I have seizures and I asked him if I could have MS. He did all the testing and imaging and said I don't, but that I have fibromyalgia.
Because of two male doctors ignoring what I told them and offering no help, I switched to a female Primary Care Physician. Since I was a working RN (24 years ago), I did a head-to-toe assessment on myself and wrote everything down. I took it to my new doctor, who reviewed it. She immediately said that it was classic FM. A year later, she saved my life when she diagnosed my Non-hodgkin's Lymphoma. Since then, except for my oncologist and later a rheumatologist, my doctors have all been women.
699d
About 20 years ago. I read a article in a magazine, took it to my doctor and said āthis is what I haveāā¦the rest is history because sure enough it was. Sheās an amazing rheumatologist šš«¶š¼
698d
@Lollyr that's pretty much my story too. Showed her a magazine article on fibromyalgia...
700d
I was finally diagnosed with fibromyalgia in 2005 when I was 45. My doctor kept telling me it was depression. I told him that I'm not tired and achy because I'm depressed - I'm depressed because I'm always tired and achy! That's when he decided to do more testing.
@LSneiderwine right?!?! I was so angry when I was diagnosed with lymphedema last year. They said maybe if you lose weight itāll go away. You probably developed lymphedema because you gained weight. I was like, no!!! I just told you! I was working 2 jobs AND I was going to the gym 4x a week. Suddenly I noticed swelling in my legs, tired, pain everywhere. My feet looked like balloons. I stopped going to the gym because I couldnāt fit into my shoes. I quit my part time job. The swelling came first.
2
693d
@Andi71 why can't they follow chronology? I think it's because they can't see time.
@LSneiderwine yes you have to speak up!
My neurologist (I have seizures) diagnosed me at 30 in 2020.
I was 32 when diagnosed
701d
When I was 31
After suffering for 16 years I was dx at age 30 in 2000.
I was diagnosed by my Neurologist in 2015, 2017 by a rude Rhumatologist and 2018 by another Rhumatologist.
691d
@Gidgetmom I was 57 at the time of the first diagnosis.
About 20 yrs ago
When I was 38...due to prolonged emotional stress..I'm now 65 pain managed by medication. Fatigue still a big issue
@cardeg oh yes!! That wonderful fatigue š„±š“
2016 by rheumatologist
I was diagnosed at The Cleveland Clinic when I was 14
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikenessā¢ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions