Xolair for MCAS: Experiences?

I started xolair for mystery chronic idiopathic uticaria three months ago. I believe is MCAS but doc not willing to hear about research with mcas testing. So they are just trying to treat whatever this is. It's autoimmune based on my CU index of 17

My partner has. It has helped then tremendously. We're actually at a Xolair appointment for them right now. I haven't yet. My doctor says my condition is far worse, and she's worried I'll have a bad reaction

I haven’t

I was going to but couldn’t bc I have severe adrenal fatigue which is a contraindication w xolair. My reactivity in general is also way too high right now and that stuff stays in your system for a while and can’t be flushed out or anything

Yes I did xolair 6 months didn’t really notice an improvement.

I am so sorry that happened to you :(

They're both -umab (dupixent is dupliumab).

No, but I tried dupixent. And had an allergic reaction that landed me in the ER, which was a whole nightmare in and of itself because they assumed it was a street drug despite me holding up my phone to show them because they refused to google it themselves.