Sweet_Lou

256d

I don’t know anyone my age with RA. Can anyone relate?

Prednisone

Rheumatoid Arthritis (RA)

Chronic Generalized pain

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  • Sweet_Lou

    255d

    Thanks buttercup! It’s rough out there lol

  • StrugglinMama

    255d

    I was diagnosed with RA when I was 15 I'm now 35 bout to turn 36

  • warriors

    254d

    Me too💕

    • warriors

      253d

      DX at 15 about the be 36

  • DeeMichelle

    254d

    I was diagnosed with RA at 17 now I'm 34

  • poodlelover28

    254d

    Diagnosed with RA at 15 now I'm 23. I know we aren't super close in age but I know what it's like to not know anyone in person with RA.

  • MrsFuller

    254d

    I don't know anyone who's as lucky in the health department as me.....and that makes me happy. I hate the hand I was dealt, but I wouldn't wish this on my enemies.

  • sonya52

    254d

    Wow I was 12 when I got Diagnosed it went into remission for some years after until I was about 30 and it's been hell every since. I'm now 52 . The flare-ups are off and on now worse being having to go to hospital when it it's all joints from head to toe that's happened like 7 times since I was 42

    • StrugglinMama

      253d

      wow... I'm so sorry... I've had a rough few years not wanting to be on anything since I was preg and breastfeeding.. I'm so ready for my appt on the seventh to finally get on a treatment plan

  • AnaFau

    253d

    I'm 37, diagnosed at 14. Open to chat if you're feeling lonely

  • PibblesandTea

    253d

    I'm 48. I was just dx with RA 2 years ago. I haven't found any meds thatve helped so far, I have found 2 I'm allergic to tho. Next appt I'll be talking to my Dr about biologics.

    • Sweet_Lou

      251d

      sounds like a struggle! I hope you find a treatment plan that works for you soon

  • Lors

    251d

    Dx 2013 , never a day without pain. My RA is tied to my Crohns. I used cbd and thc to help with pain. Honestly the last year has been rough and tired of pain.

  • MLee

    251d

    I got diagnosed with RA at 15 and I'm 18 now and have only seen one other person in their teens years have it, it can feel isolating

    • MLee

      251d

      and I've only seen them online lol never met anyone in person with it anywhere near my age

    • StrugglinMama

      240d

      I was diagnosed at 15, I'm now 36 but I've only met one older lady that has RA , I've never met anyone other than her, but online thru this app I've been able to connect with a lot of ppl

  • rohi55

    247d

    Diagnosed in 2020 and now 24, I don't know anyone who's had this near my age, and it feels really isolating sometimes, I downloaded this app primarily because of this so I'm glad I found it :)

    • StrugglinMama

      240d

      I completely understand that feeling. I was diagnosed at the age of 15 and it's an "invisible disease" so I looked fine but I couldn't move or do anything like everyone else my age. I was n a wheelchair for months, had to quit marching band and volleyball and decided to be homeschooled due to the fear of being picked on and judged.. I am now 36 so I've worked past all those issues but still it's hard when no one understands why u can't do things they can

      • rohi55

        236d

        exactly! And most people will say to me at least it's not cancer... like what? I even told a friend and she said "oh okay" like it's nothing, it's really exhausting!!

  • maddy14

    241d

    I'm 40 and was diagnosed at 9 yrs old didn't get flare until 2016 and now 2022.

    • StrugglinMama

      240d

      what med helped ur flare??

      • maddy14

        236d

        I was put on Prednisone and that's what helped this time I'm on other medications doc don't wanna put me on steroids cause it affects my sugar.

  • maddy14

    240d

    They had me on Prednisone

  • StrugglinMama

    236d

    I've never met anyone other than on this app that has RA other than an older lady up the street from me

    • maddy14

      236d

      I had juvenile arthritis at 9 and I just got diagnose with RA but with no marks.

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