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Looking for Someone Who Understands: Living with RA

Sweet_Lou

703d

I don’t know anyone my age with RA. Can anyone relate?

4

28

28

Prednisone

Rheumatoid Arthritis (RA)

Chronic Generalized pain

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    • StrugglinMama

      683d

      I've never met anyone other than on this app that has RA other than an older lady up the street from me

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      • maddy14

        683d

        @StrugglinMama I had juvenile arthritis at 9 and I just got diagnose with RA but with no marks.

        0

        Reply
    • maddy14

      687d

      They had me on Prednisone

      1

      Reply
    • maddy14

      688d

      I'm 40 and was diagnosed at 9 yrs old didn't get flare until 2016 and now 2022.

      0

      Reply
      • StrugglinMama

        687d

        @maddy14 what med helped ur flare??

        0

        Reply
        • maddy14

          683d

          @StrugglinMama I was put on Prednisone and that's what helped this time I'm on other medications doc don't wanna put me on steroids cause it affects my sugar.

          1

          Reply
    • rohi55

      695d

      Diagnosed in 2020 and now 24, I don't know anyone who's had this near my age, and it feels really isolating sometimes, I downloaded this app primarily because of this so I'm glad I found it :)

      1

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      • StrugglinMama

        687d

        @rohi55 I completely understand that feeling. I was diagnosed at the age of 15 and it's an "invisible disease" so I looked fine but I couldn't move or do anything like everyone else my age. I was n a wheelchair for months, had to quit marching band and volleyball and decided to be homeschooled due to the fear of being picked on and judged.. I am now 36 so I've worked past all those issues but still it's hard when no one understands why u can't do things they can

        1

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        • rohi55

          684d

          @StrugglinMama exactly! And most people will say to me at least it's not cancer... like what? I even told a friend and she said "oh okay" like it's nothing, it's really exhausting!!

          0

          Reply
    • MLee

      698d

      I got diagnosed with RA at 15 and I'm 18 now and have only seen one other person in their teens years have it, it can feel isolating

      1

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      • StrugglinMama

        687d

        @MLee I was diagnosed at 15, I'm now 36 but I've only met one older lady that has RA , I've never met anyone other than her, but online thru this app I've been able to connect with a lot of ppl

        0

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      • MLee

        698d

        @MLee and I've only seen them online lol never met anyone in person with it anywhere near my age

        0

        Reply
    • Lors

      698d

      Dx 2013 , never a day without pain. My RA is tied to my Crohns. I used cbd and thc to help with pain. Honestly the last year has been rough and tired of pain.

      0

      Reply
    • PibblesandTea

      700d

      I'm 48. I was just dx with RA 2 years ago. I haven't found any meds thatve helped so far, I have found 2 I'm allergic to tho. Next appt I'll be talking to my Dr about biologics.

      1

      Reply
      • Sweet_Lou

        699d

        @PibblesandTea sounds like a struggle! I hope you find a treatment plan that works for you soon

        1

        Reply
    • AnaFau

      701d

      I'm 37, diagnosed at 14. Open to chat if you're feeling lonely

      1

      Reply
    • sonya52

      701d

      Wow I was 12 when I got Diagnosed it went into remission for some years after until I was about 30 and it's been hell every since. I'm now 52 . The flare-ups are off and on now worse being having to go to hospital when it it's all joints from head to toe that's happened like 7 times since I was 42

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      Reply
      • StrugglinMama

        701d

        @sonya52 wow... I'm so sorry... I've had a rough few years not wanting to be on anything since I was preg and breastfeeding.. I'm so ready for my appt on the seventh to finally get on a treatment plan

        0

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    • MrsFuller

      702d

      I don't know anyone who's as lucky in the health department as me.....and that makes me happy. I hate the hand I was dealt, but I wouldn't wish this on my enemies.

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    • poodlelover28

      702d

      Diagnosed with RA at 15 now I'm 23. I know we aren't super close in age but I know what it's like to not know anyone in person with RA.

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    • DeeMichelle

      702d

      I was diagnosed with RA at 17 now I'm 34

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    • warriors

      702d

      Me too💕

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      Reply
      • warriors

        701d

        @warriors DX at 15 about the be 36

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    • StrugglinMama

      702d

      I was diagnosed with RA when I was 15 I'm now 35 bout to turn 36

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      Reply
    • Sweet_Lou

      703d

      Thanks buttercup! It’s rough out there lol

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      Reply

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