CallieLou

108d

This has been the year of getting my health figured out and on track. So far this year I’ve been diagnosed with ADHD, sleep apnea, prolapsed pelvic organs, fibromyalgia, migraines, vitamin D deficiency, kidney cysts, and now waiting for a ankylosing spondylitis diagnosis. This is just in addition to the depression, anxiety, PTSD, obesity, asthma/allergies, and dermatillomania that I’ve had as far back as I can remember.
I thought I knew pain before, but this is stupid. I feel beaten down most days. I’m not yet 30 but my body feels older. I have to young boys I want to be able to chase around and play with them. I don’t know how to manage….

Generalized pain

Ankylosing Spondylitis (AS)

Depression

Spondylolysis

Fibromyalgia (FM)

View all
  • CrazyRabbitLady

    108d

    I'm in a similar boat-- my parents didn't believe in doctors, so I've only recently been able to actually start learning about all the issues my body struggles with-- I'm only 25, but I want to be able to keep up with my future kiddos. You're not alone!

  • Laurel.Rose

    107d

    i’m with you in a lot of that- i’m low on words tonight, but you have my heart behind you.

  • EatenByWormy

    107d

    I hate to add this on but I have no idea how often docs tell their AS patients about it- jsyk, if you ever experience sudden onset red eyes, light sensitivity, and severe headache/sharp eye pain, go to an optometrist or ophthalmologist immediately. The inflammation that comes w AS can pop up in the eyes as well :( the condition is called iritis or uveitis and it’s time sensitive but entirely possible to resolve with no lasting damage. I’ve worked through making my home easier for me to navigate and spare myself from expending physical and mental effort on things that aren’t what I want to get hung up on- a visible spot for my key ring, having an open closet so I don’t have to do anything to see my clothes, a metal cart next to my bed with my medication bottles and other handy things so I can refill my weekly pill cases without getting out of bed, etc. When I changed my perspective from “I hate how things are hard for me for no reason” (and I still do smfh this sucks) to “where are my pain points and how can I reduce or eliminate them” it allowed me to cut out my stress at home little by little.

  • Teardrops

    0d

    Howdy. I have been on this app for a while but just got told I have AS or possibly I looked at the notes from my appointment yesterday…. I knew I had fibromyalgia but AS is new. I don’t know how to handle this. I have a lot of pain in my back and down my right leg, my knee hurts so bad. I have tried so many things in my life. I don’t know what to do now. I mean I have several doctors taking care of me, but it’s sucks on how to handle it. I wish I knew what would take the pain down several notches

  • Oouchthathurts

    0d

    Welcome, I completely get you. The only way I can get them to stop diagnosing me is to stop going to the doctor. Lol 😂 I deal with my frustration with humor. I hope your smiling.

    • Teardrops

      0d

      yea I guess that’s a good answer. I am smiling slightly

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