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Long hauler with lung scarring seeking advice

Chill_Bill

724d

Any long haulers who have scarring in their lungs from hospitalization and can’t lay on one side anymore? I always feel like I have sand stuck in my throat and when I lay on one side I feel like it’s in my lungs.🙁

2

11

11

Diseases of lung

Long COVID

Dyspnea

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Top reply
    • Blue_Penguin

      408d

      I couldn't lie on left side for 1.5yrs. Felt like I was about to pass out instead of normal going to sleep. Would roll carefully to right side and heart would pound loudly for a minute. Full heart echo was 95%+ normal. Doc has no ideas.

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    • Blue_Penguin

      408d

      I couldn't lie on left side for 1.5yrs. Felt like I was about to pass out instead of normal going to sleep. Would roll carefully to right side and heart would pound loudly for a minute. Full heart echo was 95%+ normal. Doc has no ideas.

      0

      Reply
    • PhoenixStrong

      516d

      I am diagnosed with pulmonary fibrosis post COVID. Interstitial lung disease

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      Reply
    • Phoenix_Rising

      720d

      Yes I have scarring on both lungs

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      Reply
      • Nebhuskergal

        720d

        @Phoenix_Rising same… I feel like I aged 40 years 😢

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        Reply
        • Chill_Bill

          574d

          @Nebhuskergal Same here. I’m a year and two months out, 37 years old, going on 60. Never would I have imagined my life like this right now.

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        • Ameenn

          574d

          @Nebhuskergal I also have a scarring on my upper right lung and I feel some pain on it now. It looks like I had it from my childhood but now I am not feeling well. Any help?

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          Reply
        • Phoenix_Rising

          720d

          @Nebhuskergal me too😥

          1

          Reply
    • Chill_Bill

      721d

      I never thought in my life that I’d think about what it’s like to have healthy lungs. I can’t imagine having a long life with this being permanent. Its terrifying because I feel like if it got even a little worse then this, I wouldn’t be able to breathe. When even one inhale of someone else’s cigarettes enters my body, I choke for days.

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      Reply
      • Nebhuskergal

        721d

        @Chill_Bill yeah cigarette smoke about kills me !

        1

        Reply
    • Nebhuskergal

      722d

      I have lung issues from Covid I sleep with pillows to keep me from rolling too far over onto my stomach or I can’t breath well or flat on my back

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      Reply
      • Chill_Bill

        721d

        @Nebhuskergal It’s absolutely horrible and it brings me comfort in some way to know I’m not the only one and that I’m not delusional about how bad my lungs are after Covid.

        1

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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