Dealing with Ignorance: Responses to Common Illness Misconceptions

@Terp my view might not work for you but here's one i apply to that idea... on "am i making things up," who cares? why does it matter? like, for treatment reasons, you need to be able to convince a provider you have what you have, but in daily life? your lived experience is far more powerful than whether you supposedly do or don't have an illness, and for a lot of chronic illnesses treatment of symptoms is the most treatment that can be done. i dont see any reason that doubting your experiences would put any good into the world, regardless of whatever other people say obviously its not as easy as "just dont care what others say!" or there'd be no reason for this thread to exist ::p but if you take the meaning that people have assigned to whether youre right or wrong about your own life out of your mentality, its easier to say "fuck you, you dont live my life, you've no way to know"

@55isMe This!! I have people question what I do for a living because I do it from home! I crafted my career around my conditions basically because unfortunately my conditions are a brick wall that won’t budge. But I still found a way to work and work HARD. People don’t get that though. It’s frustrating.

@doodoofart reminds me of the “he needs some milk” vine 😂 I have had that comment tons, especially as an ill child! All those got milk campaigns made us overestimate Milk’s Power…

@anemone The looks are the WORST. What gets me are the looks of pity they give my husband, it seriously kills me

@tallgirl22 This!! I’ve had people I called friends tell me all I do is sleep, and make fun of me for being tired, or missing things. Showing up late and they ask if I slept in, when I was at home trying to take medicine to deal with flareups. It hurts to hear.

@tallgirl22 the unsolicited advice is the one that gets me, someone on here randomly came into my dms one morning to tell me all my problems would be solved if i just stopped eating cinnamon. yeah, my joints will just stop subluxing all the time if i stop eating a thing i hardly ever have in the first place. when i told them i wasnt interested in unsolicited advice, they said something along the lines of "but you'd rather wallow in your cinnamon rolls"... bitch i don't remember the last time i had a cinnamon roll because i've never liked them??? obviously i blocked and reported but man. i'm not even safe on here, an app meant for disabled people

@whicheveroneiam I love this 😂 If missing the point was an Olympic sport, the bio typical population would have a massive team

@kateafranklin 😂 Exactly, and then the inevitable prescriptions for Valium or Trazedone that just make you even more dead feeling the next day