Dealing with Misdiagnosis and Frustration as an Occupational Therapist with Fibromyalgia Symptoms

May want to try Amitryptaline. It is an SSRI but used for nerve pain relief. It works very well for me.

I have also had stabbing pain. When I tell people they look at me like I'm crazy. It is sad to hear all of your struggles. They are my own as well. It does help to hear what you are sharing here. I need the validation. It helps me to know I am not alone. Thanks for sharing. I hope soon people will take this disease a bit more seriously. There are many people who don't even believe it's real

I understand your frustration. Of of this is keeping hope which is really difficult. Don’t quit - it’s a journey for sure you will see gains and then setbacks. I’m feeling the same. For the fatigue this has worked really well. It’s a supplant developed by a rheumatologists specifically for fibromyalgia. They have other products too. Your rheumatologist has to order it: https://shop.oasis.care/supplements/ane-fatigue

I’m kinda in shock right now. So many of you having the same experiences as I have blows my mind. I’m on doctor 5 or 6. She’s a rheumatologist and kind, but we’re getting nowhere. I have same issues of stabbing or “bee sting” like pains. The fatigue and cognitive impairment is the worst. Feeling like I should just quit. Thanks for sharing.

I also have found the best results with my physical therapist. Also sleep is incredibly important. The reason why I might say the mental stuff is important is not because it is ignoring the physical aspect of the condition, but because dealing with that stuff will help you sleep better.

You know more about your body than they do, and you are allowed a second opinion. I'm so so sorry you wasted your time, but everyone I know who got satisfactory treatment for ANYTHING beyond the common cold had to fight for it. You are a person, you know your own pain, you deserve respect. It will take time and energy and some of your own studying, but you WILL get what you need somewhere.

You’re not alone. I went through the same, exact thing. My advice is forget the general practitioner and go to an internist. They are WAY MORE knowledgeable about immune disorders.

I’m really sorry you are experiencing this. I’ve had similar unexplained pain and it suddenly comes on, lasts for days or weeks and then stops. I am going to a neurologist to see about getting tested for Small Fiber Neuropathy (SNF) - they biopsy the skin. Not exactly the stabbing symptoms but maybe worth a try. Hope you find an answer

Random stabbing pains is something that the doctors have no idea about. They tend to ignore what they don't understand. I have had the exact same thing since like middle school and I have never once found any doctor that actually tried to figure out what it is or what to do about it. It is very frustrating. I think that the best thing is to either accept that you can't do anything about it or get a different doctor that will at least write it down. Fibromyalgia is a tough illness to have. You always feel like you have never felt worse and then you feel worse, and they want you to go to counseling and learn pain acceptance instead of ac doing anything to help you. The best person I have found to help me is my physical therapist. She specializes in fibromyalgia and Ehlers-Danlos Syndrome and she listens to her patients and uses that information to help others. I'm sorry that you are having to go through this. I hope you can get some answers and some relief