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834d
Im majorly concerned with my level of exercise. I’m specifically diagnosed with hEDS, as well as POTS, and it takes a serious toll on my joints and circulation. I have fragile knees that dislocate fairly often and I get faint very quickly upon exertion. I want to get back into exercising, but am worried about unintentionally worsening my health. I’m currently unable to get into physical therapy, so I was wondering if there are any safe alternatives for joint strengthening and muscle building exercises? Thanks!
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Joint pain
Ehlers-Danlos Syndrome (EDS)
Symptoms Involving Nervous & Musculoskeletal Systems
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832d
Stretching makes me feel good and certain yoga poses but nothing that will hyper extend. It’s trial and error. I heard swimming is good but not accessible to everyone. Sending love 💕
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Thank you for the advice, everyone! Will definitely look into the yoga. Unfortunately we don’t have pools open here until summer. Can’t wait to try, though!
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Jeannie Di Bon is a PT with EDS, and she has a ton of online resources and exercises
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ive heard there are yoga videos for people with hEDS on youtube, maybe start there?
833d
Swimming would be good to - no pressure on your joints
Same here, I have heard of a specific type of yoga, but without being sure I can’t recommend.
cheers Chrys. I relate to this. I had to stop PT and OT because it was making my pain and mobility worse instead of better. I will wait with you for suggestions and advice.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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