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Chrys

834d

Im majorly concerned with my level of exercise. I’m specifically diagnosed with hEDS, as well as POTS, and it takes a serious toll on my joints and circulation. I have fragile knees that dislocate fairly often and I get faint very quickly upon exertion. I want to get back into exercising, but am worried about unintentionally worsening my health. I’m currently unable to get into physical therapy, so I was wondering if there are any safe alternatives for joint strengthening and muscle building exercises? Thanks!

Top reply
    • AshMarie

      832d

      Stretching makes me feel good and certain yoga poses but nothing that will hyper extend. It’s trial and error. I heard swimming is good but not accessible to everyone. Sending love 💕

    • Chrys

      832d

      Thank you for the advice, everyone! Will definitely look into the yoga. Unfortunately we don’t have pools open here until summer. Can’t wait to try, though!

    • AshMarie

      832d

      Stretching makes me feel good and certain yoga poses but nothing that will hyper extend. It’s trial and error. I heard swimming is good but not accessible to everyone. Sending love 💕

    • Chickpea

      832d

      Jeannie Di Bon is a PT with EDS, and she has a ton of online resources and exercises

    • neonbirds

      832d

      ive heard there are yoga videos for people with hEDS on youtube, maybe start there?

    • Kami

      833d

      Swimming would be good to - no pressure on your joints

    • Bijoux_bean22

      833d

      Same here, I have heard of a specific type of yoga, but without being sure I can’t recommend.

    • ratdad

      834d

      cheers Chrys. I relate to this. I had to stop PT and OT because it was making my pain and mobility worse instead of better. I will wait with you for suggestions and advice.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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