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Prescribed Low-Dose Naltrexone for Chronic Fatigue Syndrome

princessbun

685d

I finally got prescribed Low-Dose Naltrexone for chronic fatigue syndrome. (I also have POTS and IBS/SIBO) I am wondering who else has any experience with this medication. It is pretty pricey where I am at but I am so willing to try it. I ask because I was prescribed 4.5 while I heard some people start at .25, .5, so on.. I will be picking it up from the compounding pharmacy soon. Thanks everyone!

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Naltrexone

Myalgic Encephalomyelitis

Acute lethargy

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Top reply
    • Mcmeadow

      444d

      @princessbun I tried it for about 3 months. It didn't help much, although I couldn't raise the dose because I learned that LDN can cause herx reactions, which it did for me.

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    • squigglybeanz

      653d

      4.5 is an extremely high dose. I started at like .25 lol. It did not work for me and made me very tired, but I am part of a Facebook group who say that it changed their lives! My mom’s fatigue had also improved drastically since being on LDN! Everyone is different, but I definitely would start on a much lower dose and then titrate up. It can cause some pretty nasty symptoms if you take too much right away! Crossing my fingers and praying it works for you ❤️❤️

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    • Mcmeadow

      661d

      My doctor suggested this to me in the office just the other day and I was thinking of doing it. Should I try it?

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      • princessbun

        653d

        @Mcmeadow it's been a month so far and I havent noticed much other than I'm taking my salt pills less.

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        • Mcmeadow

          444d

          @princessbun I tried it for about 3 months. It didn't help much, although I couldn't raise the dose because I learned that LDN can cause herx reactions, which it did for me.

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    • MomofRock

      682d

      Can I ask, how does this medicine work?

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      • princessbun

        668d

        @MomofRock check out ldn research trust website it explains it pretty nicely, better than I could!

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    • Babypossum

      683d

      I was just prescribed this too. I hope it helps the both of us 😸 I was told to start at 0.5 and increase gradually but everyone’s dosing situation is different.

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    • Belugabear

      685d

      Are they having you start at 4.5?????? You really need to titrate up. I’m no doctor of course but beware of extra side effects starting at the high dose! I add 0.5 every three days. I’m just getting to the full 4.5 now and it seems to be working!

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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