See Alike in...

Alike App

Browser

Do I Need Treatment for Long COVID?

dannyz

680d

should I be getting treatment? is there any specific test I need for a diagnosis of long covid?

0

16

16

Lethargy

Long COVID

Depression

Testicular Dysfunction

View all
    • Mimini

      675d

      Also, to get into the University of Iowa post-covid clinic, I had to have a positive PCR test. They are sending my husband for a special test with a very long name to determine his antibody level. That will determine his eligibility for their program. I will try to find the name.

      1

      Reply
    • Another_Joe

      680d

      So I have long Covid and go to the Veterans Administration for medical care. The didn’t diagnose me with long Covid till I had every other medical test done possible for any other condition I might have. I have seen a ton of specialists. Now I get to follow up with infectious disease and a few other specialists every few months now.

      0

      Reply
      • UsedToBeCool

        565d

        @Another_Joe That’s what they’ve done with me too. Dizziness, ridiculous brain fog, & tremors for almost a year now. CT, MRI, tons of blood tests, 2 neurologists, a neuro psych eval, ENT, hearing test, optometrist, psychiatrist, and not one single person said “long Covid.” Then I saw an article in The Atlantic & was like - Holy crap; that’s me!! Went to my GP & she told me to research it on the internet. ??? Is it just because nobody knows how to treat it, so you think?

        0

        Reply
        • Another_Joe

          565d

          @UsedToBeCool Right, my followup with infectious disease was last week and he didn’t have any news for me. It’s crazy to go to these doctors and realize I am just there reporting my symptoms so that can gather data and add it to the long COVID database they are building. My neurologist said it best. “We are here for you and we are gonna get you through this.” Feels nice to hear but doesn’t help. My teeth permanently chatter and my neurologist still hasn’t made a diagnosis. My first neurologist appointment was in march I think. I told my ID doctor that I want to do the Stellate Ganglion Block and he didn’t bat an eye. Can’t wait to see what the pain clinic doctors say to me. See them in a couple weeks.

          0

          Reply
        • UsedToBeCool

          565d

          @UsedToBeCool * I was also vaccinated 3x

          0

          Reply
      • Mimini

        675d

        @Another_Joe my primary care wanted to do the same route to diagnosis, diagnosis by telling out everything else. But she couldn't get specialists in our area of the state to assist. I was stuck in a limbo. I was scared and tired of being stuck so I called the UIHC post-civic clinic myself, sent what was required, and lucked out on a cancellation. 3 well wait instead of 6 months.

        1

        Reply
        • dannyz

          668d

          @Mimini I went to 5 neurologists. 5 hospitals. All top Noth centers in California. The Mayo Clinic in Minnesoto turned me down, lol. Lost consciousness in April, on life support for 3 days. No diagnosis. None. Brain fog, neuropathy in feet and legs. Poor balance. Poor vision. No diagnosis. Fatigue. Depression. But, I vaccinated. 3x! No more

          0

          Reply
    • Abellona

      680d

      You have long Covid if you still have symptoms after having Covid. Talking to your doctor should help, the test depends on the symptoms. I’m just starting with the Covid recovery center

      0

      Reply
    • Mimini

      680d

      Yes. You definitely need treatment. There can be so very many complications. Research covid clinic in your area.

      0

      Reply
      • dannyz

        680d

        @Mimini , I went to Stanford University. Saw a Neuroimmunologist. They have a study there. She blew me off

        0

        Reply
        • dannyz

          668d

          @dannyz I went to the same place, waited for 2 months. She blew me off to. Disgusting

          0

          Reply
        • Mimini

          675d

          @dannyz that's horrible. The first specialist I saw was ho-hum. The 2nd was fantastic. But finally getting to her was truly a miracle. The worst part is that there isn't enough known to treat it anyway.

          0

          Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion