Need help getting diagnosed with fibromyalgia or chronic fatigue syndrome

I've had the most luck with a rheumatologist. I tried internal medicine and she was terrible. I hope you get some answers soon

I had severL test and retest and even had a bone marrow biopsy as I ha e several issues that feed off each other. I was finally sent to MU to see an infectious disease doctor. I am now being treated by the rheumatologist, orthopedic doctor, chiropractor, dermatologist, and a primary doctor or his nurse practitioner. I would start at rheumatology if I were you. I tried that forest but I didn't have all the normal pressure points, however the infectious disease doctor called it focused fibro, it has gotten worse over the years.

Same here many test ran and re-ran. I seen at least 5-6 primary Drs having them bounce me back in forth because they didnt know what to do till one sent me to a nuerologist who had diagnosed me but didnt explain nothing to me other then here is a medicine try this. No follow ups or anykind of direction was given. That was 7 years ago. Unfortunately you have to be your own advocate. Now my new primary is helping me.

Rheumatologist. Prayers!

Thank you guys. My next appointment with my Dr I will request that then

rheumatology might be your best bet at this point then. the doctors that deal with fibro and cfs vary but rheumatologist or often where people are referred to. my primary initially diagnosed my fibro but my rheumatologist is the one actively treating it at this point because my primary retired. unfortunately you really just have to get lucky with finding the right doctor to work with you.

I've been seeing rheumatologists and getting tested for autoimmune stuff since I was in highschool. I'm now 35, and I finally had a rheumatologist officially diagnose me this past December. It basically can't be diagnosed, by what he told me, until everything else is ruled out. However, I really think I could have gotten this diagnosis years ago lol. I see it said that you should continue to see your rheumatologist, but this one told me there wasn't much else he could do for me. So I feel you.