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alikenoelle

773d

I want to connect with other women dealing with Systemic Lupus Erythematosus. Although I'm 8-9 years into this, it's still crazy making sometimes. I want to give advice, share my story, be as helpful as I can. I know it's hard. But we do hard things 💪🏼

Top reply
    • karinad

      745d

      Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

    • karinad

      745d

      Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

    • Randa

      747d

      What were the symptoms of kidneys failing? I haven't experienced that yet but it seems to be pretty common for us. I do have enflamed liver with elevated liver enzymes and that's got me freaking out a little

    • tries

      757d

      ✋ And Thank you for sharing ❤️🙏!

    • karinad

      763d

      Wait. I had already commented lol. Want to start a groupchat?

    • karinad

      763d

      Hi!! I'm 24 and just got my diagnosis on January but was diagnosed with Sjogren's last year and have been dealing with symptoms for many years

    • Jocevice

      763d

      I just was diagnosed last week! It’s been crazy and I have so many questions and a lot of stress I’m just trying to figure out my symptoms bc I also have POTS and EDS

    • SaraVirginia

      763d

    • Benisha

      767d

      I am 32, I have been dealing with lupus since I was 18. I got diagnosed in 2009 at the age of 19. My kidneys did not fail until I was 30…chemo did not work. I am on the waitlist for a kidney.

    • karinad

      770d

      Hi! I just got diagnosed in January but I've had symptoms for a few years. I'm 24

    • abb311

      772d

      Hi! I’m 25! I was diagnosed with SLE years ago in 2018-19 but have had symptoms since I was 8 & no one knew what was wrong with me until my kidneys started to fail 😅

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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