See Alike in...

Alike App

Browser

Bewell

770d

While having Chronic Epstein Barr Virus active for one full year along with fatigue Brain fog and shortness of breath I have been diagnosed with very high blood pressure and sleep apnea with Hemangioma vascular tumors in my mid and lower spine all over with 4 bulging disc and a herniated disc and a cyst in lower back as well. My legs are red and swollen when I stand and I now have pulsating ringing in my ears and have become dizzy when standing and moving around a lot. I get flush all over and I itch for no reason which causes me to turn very red and bruised. I can now see my blood vessels in my legs and feet. If I sit my feet fall dead asleep! I have fallen several times due to the dizziness. For 9 years now I have been seeing double with a damaged optic nerve. My eye pressure is fine. I have been to so many doctors I am sick of doctors!! Now after being sent to the University of Alabama to see a nuerologist who is testing me for Mayastevia Gravis my regular MD saw my blood pressure after standing and sitting and my pulse and higher number changed. She thinks I may have POTS Syndrome Dyaumastomia which fits all of my symptoms exactly. She has ordered me to have the tilt table test done which I know I will not like! I have had one infection after another this past year due to the EBV phuemonia 5 times along with other infections. I can no longer work since January. I am having a hard time dealing with the fact that I can no longer do the things I used to could do at the moment! If anyone can relate to any of these symptoms or Illnesses please chime in??? I am open to hear! Also I may need knowledge about this new possible diagnoses but I too have a lot of knowledge with other medical issues to help others happily! Thank you!! My brain fog is so bad I forgot my nickname on here! Lol not funny but so frustrating.

Top reply
    • thrillsnchills

      393d

      I am having trouble figuring out which doctor to see for what . I have so many symptoms all at once that I am overwhelmed. I had epstien barr in August 2021 the fatigue never left the doctor testes me in may of 2022 said I have Cyclomeglovirus and epstien barr. There had got to be something they can do. I'm being told there is nothing to do but let it run its course. I read that they can do antivirals through it to help had anyone else heard of any treatments

    • thrillsnchills

      393d

      I am having trouble figuring out which doctor to see for what . I have so many symptoms all at once that I am overwhelmed. I had epstien barr in August 2021 the fatigue never left the doctor testes me in may of 2022 said I have Cyclomeglovirus and epstien barr. There had got to be something they can do. I'm being told there is nothing to do but let it run its course. I read that they can do antivirals through it to help had anyone else heard of any treatments

    • thrillsnchills

      405d

      I have had dizziness headaches blurred vision fatigue heart palpitations weakness muscle pain trouble swallowing since I got EBV off and on my immune system is not good always sick w something or another very confused and how to handle it. Or what I can do about it. Which doctors tests ect.

    • Oouchthathurts

      769d

      I think we might be twins. You are not alone. I also have many of the same issues and been given so many diagnoses throughout the years. I’ll send you a message so we can chat.

      • Rosabella

        619d

        @Oouchthathurts same here. I have a lot of these same experiences

    • Campbell

      769d

      I can so relate! After 10 years of pressing, I was finally diagnosed in May with POTS, Hashimoto’s, Primary Immunodeficiency with Epstein Barr, Fibromyalgia, and IBS. I had a recent colonoscopy which revealed Diverticulosis, which explains the pain I am having in my lower left abdomen. I actually had half of my thyroid removed in 2010 and they still refused to diagnose me with Hashimoto’s. A scar on my neck staring them right in the face. Anyway, finally on meds, but unable to work. COVID aside, I catch everything and am out of work for weeks at a time. Frustrating, so I totally get you!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion