Bleuphoric

200d

Diagnosed with ADHD and Ehlers Danlos Syndrome (and many co-morbidities) within 6 months of each other in my early 40’s… now what?!??

Bipolar Disorder

Ehlers-Danlos Syndrome (EDS)

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  • InconclusiveResults

    200d

    I'm in my 30's and just found out as well! 😅 It's really affirming in a way, because I finally have an answer, but it's a lot to take in... It seems like it's all about being aware of EDS as the root cause for certain health issues, and just managing what you've got. 💝

    • Bleuphoric

      198d

      I totally get it being affirming. Definitely signs throughout my life that were essentially ignored…

  • Sunshine79

    199d

    I was diagnosed with ADHD as a kid but my ehlers-danlos diagnosis didn't come until my early forties as well. It's so weird that they're comorbidities! Nothing's will start to make sense and you'll understand and forgive yourself a little more. Hopefully since you're over the hill like me you will also hold people accountable for being jerks about it.

    • Bleuphoric

      198d

      I’m most sad I didn’t know before my mom died because she definitely had it and I wish she would have had better quality of life.

  • Sunshine79

    199d

    Now things, not nothings. LOL thanks speech to text!

  • Alice27

    198d

    Check out the book Disjointed, it's all about hEDS (if that's the kind you have). There's a lot on autonomic dysfunction (abnormal stress response) and how it mimicks ADHD and mood disorders.

    • Bleuphoric

      198d

      they are assuming hEDS

  • Alice27

    198d

    I was diagnosed with EDS at 40 also, btw, and with ADHD in my teens. Hang in there!

    • Bleuphoric

      198d

      quite the combination

  • Magpie42

    195d

    I was dxed hEDS in my mid 30s. Doc just dxed me adhd about 2 months ago. I'm now in my 40s.

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