See Alike in...

Alike App

Browser

Looking for Lupus Diagnosis Stories

AlyxRiley

634d

So I was curious about those of you with lupus what your diagnosis journey was like (if you're willing to share) my new pcp did some blood tests Friday as a start since I was showing so many symptoms and was curious what else I should be expecting?? tia!

0

3

3

Gabapentin

Chronic Pain

Systemic Lupus Erythematosus (SLE)

View all
Top reply
    • Rayningtigress

      609d

      For me, this last year has been rough. All my onset symptoms hit me fast and hard, i was hospitalized. They didnt know what was going on and their still trying to figure it out. I work hard to coordinate with drs making sure anything new is shared with everyone. The first 6months was the hardest cause i flew in and out of the er and urgent care 1-3x a week. I was so happy when that started tapering down. Now im working with drs to work on some of the things that hasn't changed since leaving the hospital like my gait, and my sleep.

      0

      Reply
      Chat
    • Rayningtigress

      609d

      For me, this last year has been rough. All my onset symptoms hit me fast and hard, i was hospitalized. They didnt know what was going on and their still trying to figure it out. I work hard to coordinate with drs making sure anything new is shared with everyone. The first 6months was the hardest cause i flew in and out of the er and urgent care 1-3x a week. I was so happy when that started tapering down. Now im working with drs to work on some of the things that hasn't changed since leaving the hospital like my gait, and my sleep.

      0

      Reply
    • Melybelly

      634d

      Well first things first, it may be scary and a lot at times. But just remember that everyone’s body is different and it will also affect you differently. So yes listen to your doctors and take your medications but also do a lot of your own research and listen to your body. I’ve learned that doing that has helped me so much more than just taking medical advice. A lot of medical professionals won’t be as understanding to your personal needs as well.

      2

      Reply
      • BeeBee67

        614d

        @Melybelly 👍👍👍

        0

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion