Gailo

243d

Hi! I’m 68 & have been treated for RA for 30 years. I am concerned about the long term effects of infusion & meds I’m on…(Actermra(sp?)…& prednisone)…

Diffuse connective tissue disease

Rheumatoid Arthritis (RA)

Prednisone

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  • goggle

    243d

    I don't know why you doctor has kept you on Prednisone for so long. Have you asked?

  • Natacha

    234d

    I don't take any medication ,the medication is too toxic to my body

  • Wendi

    225d

    I won’t take the medicine either. I already have a few autoimmune diseases. When they gave me the results of this one I just said add it to the list! No more toxic medicine for me. I am on a supplement regiment. I also eat gluten free. Am I better? No! But the medicine that is prescribed doesn’t work either.

  • uno

    224d

    Was diagnosed about 15 yrs ago and all research told me that therapy was necessary because of progression of disease. Amazingly I have never had a Dr who addresses this. Won't do meds as decades of use have given me neuropathy, which is no fun either. I only take magnesium and lots of water to keep joints lubricated best I can.

    • Wendi

      204d

      How are you doing on just magnesium?

      • uno

        204d

        wonderful. Had went to my Dr over a year ago for bad restless leg, pain, severe cramps in calves. She said drink lots of water and use the magnesium at night. Sleep like a baby🥰

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