MissJamieLee

332d

Hi everyone! I am looking to talk to people like myself. I have a very long and complex medical history. I take countless medications and see countless specialists. I have, over time, become less and less functional. I feel as if I am passed between specialists, with constant new findings, new meds, and the cycle continues. I wonder how long I can survive like this as my body has been turning against me for 21 years. I’m not sure exactly what my question is. Maybe I just need to know…am I the only one?

Anemia

Dyspnea

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  • Scarlet9904

    332d

    You are not alone thats for sure I'd be on a bunch of meds if I wasn't allergic to them and most the planet onto of my medical issues so I feel you I often get the I can't help I have no med options.

  • Mariposita_Obsidiana

    331d

    You’re not alone. My symptoms are progressing rapidly. I feel useless half the time and I was just look to see if I could find a way to get a motorized scooter, and I’m only 35. I went to a store over the weekend with my friend, and after 1.5 hours, I almost couldn’t walk back to the car.

  • MissJamieLee

    331d

    I think that’s the tough thing, trying to stay mobile. When I was in my teens and 20’s, I felt like that was one of my doctors main priorities, keeping me mobile and getting me back to work. When I was 29, I finally couldn’t work anymore and went out on disability. I just broke my back for the third time and have osteoarthritis among other things. My primary care referred me to an orthopedic surgeon who said their first opening was end of April. So mobility is not a priority anymore. I went to college, had a government job and planned to change the world…now waking up is the high point of my day. I’m sure not of us were kids thinking this is who we would be when we grew up…

  • MissJamieLee

    331d

    On a basic level, we are costing our insurers money, wouldn’t it be more cost effective to fix us and offer support?

  • Pisces2022

    331d

    You for sure aren’t alone. I’ve been on countless meds myself and still awaiting results- so who knows what new meds they’ll be prescribing next.

  • jdubz

    331d

    i relate to all of that!!! i have so many health issues, i’m on so many meds, i see so many doctors, i feel like it’s never ending

  • Nat_Nat

    331d

    I'm actually at the same point in my life right now. 21, frustrated because of all of the medical bs I have to do, and rapidly deteriorating in mental and medical condition. It gets so hopeless when I think about the future. I want so bad to have a normal life with normal problems. Maybe being on this app will make me (and you) feel less alone and more normal

  • Pisces2022

    331d

    You shouldn’t feel alone in this or anyone else on here..we all will get through this one day. We are In the storm at the moment

  • beingnotseeming

    330d

    You’re not alone in that. I feel there’s times when things rapidly progress and other times when it’s just a slow progression. I do plateau at times and with the meds I’m currently taking I actually make improvements on occasion. But it’s scary and frustrating knowing your body is working against you despite whatever efforts you’re making to keep it functional. My medical history is rather complex as well. I’ve had every relevant test they have for certain and no one has an answer. I’m at the end of the line medication wise as there’s nothing else they can give me at this point. Anyway, feel free to reach out if you want

  • Pisces2022

    330d

    It’s been 2 weeks now that I’ve been out the hospital for Anemia- as they told my my symptoms would lessen as I start to build iron & blood. I still feel shortness of breath and I don’t feel 100%-it’s a horrible feeling. I haven’t even got results back yet from endometriosis biopsy- it’s a nightmare

  • Meek84

    330d

    Hi 👋 You're not alone. I've multiple meds that I take some are daily & as needed. I literally shopped Dr's until I found a Dr that did something about my issues. She ordered every test to find out what was going on with me & everything came back normal; then she started referring me to different specialists for each of my health issues

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