Told my parents I have autism, not sure what to do next…So recently I moved out of my parents house (early to mid July) and since that time I’ve been regularly going to therapy, and as I’ve been going my psychiatrist recommended doing some diagnostic feasting to try and see if any of my passed or current mental illnesses have changed or are no longer an “issue”(as I’m I’ve learned the proper coping mechanisms so that we don’t have to focus on it as much) and as we went through the test and I waited until our next appointment for the results, he found that I am in fact on the autism spectrum. The sad part being he is not a neuropsychologist, therefore he doesn’t have the necessary equipment to fully test me to figure out placement on the spectrum, support needs, etc. I found this out about a week ago, and I genuinely wasn’t sure how to tell my parents considering…they aren’t very mental health positive. Despite being scared to tell her, a few hours ago I told my mom that I am in fact on the spectrum. I’m not sure if she’s even read my text or her reaction considering she hasn’t responded. My uncle and great aunt were diagnosed with autism so I feel like it’s not too out of the blue for me to be on the spectrum if a relative or two does. I’m just not too sure how to navigate this or how to ease my anxiety with telling them. In the past I’ve been told by my parents that I was faking everything for attention, and I’m scared this will be their line of thought this time as well. They didn’t even accept the fact I had adhd until my doctor explained it to them and they saw the difference between me on my adderal vs off of it. I guess I’m just confused where to go from here?
Autism Spectrum Disorder (ASD)
Behavioral and Emotional disorders with onset usually occurring in childhood and adolescence
What equipment do you need to test for autism?
typically they connect electrode monitors to your temples and chest to monitor your cardiac and cognitive responses to different stimuli and scenarios. However I’ve heard it can very from practitioner to practitioner
This is the first I've heard of it. Everyone I know with ASD has had to take all the screenings and get a diagnosis from a psychiatrist or even a neurologist. I'm not doubting you at all. I think it would be utterly fascinating to see that evaluation. It must be wildly more accurate no?
If your parent are accepting and receptive about this, that will be wonderful! But even if they aren't, that doesn't discount the reality of how you live and function as a human being. We always hope to feel validated by those close to us, but it is important to remember that you and everything about you is valid, even if your parents are able to see things that way.
As for what to do next; naturally, you want a proper diagnosis to confirm what you know and feel, but that can be expensive and take a LONG time. Additionally, as an adult, a diagnosis wouldn't necessarily provide support you can't get in other ways. It can back up the need for accommodations at work or school, but legally you can negotiate for reasonable accommodations at any time, regardless of having an informal diagnosis. You would need documentation of a disability to receive social security support, but if you're able to work any amount of time, you will make more on your own than SSI benefits would provide. Essentially if testing is a huge barrier, it will most likely be fine to NOT pursue a formal diagnosis.
If you're just looking for how to make it through day-to-day with this "new" part of your life, that's the easiest part! I wouldn't be surprised if you already have coping skills that you just built naturally (usually it's called masking). I learned I had adhd as an adult just a few years ago, but it wasn't something new! I spent my life like this so I developed skills that helped me cope with things like forgetfulness and procrastinating and only NOW do I realize why I always did all those things. I would recommend taking some time every day or couple days to think about what parts of life are particularly difficult and causing you stress. Also, don't just think about the specific task, but give it some context: "talking to people is easy if its just one or two, but more people than that makes it too difficult" or "i dont mind that thing when im at home, but when I'm at work it really bugs me". If you can pin-point the specific "symptoms" you can easily find strategies on the internet from others who are experiencing the same! And if all else fails, it is literally my job to support people with neurodivergencies in finding ways to accommodate themselves and adapt their world to support them. Feel free to message me if you ever get stuck and want some ideas! 😊
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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