Living with Chronic Migraines: My Struggle

What helped me, my neurologist had me keep a food diary, along with when headaches hit, etc. I found I had food triggers. Some up to 48 hours after I ate it. Hot dogs are the worst because of the preservatives- which are also in deli meats like ham etc. I get uncured hot dogs now. Sugar also is a culprit. Getting very tired another. If you haven’t done the food diary thing, give it a shot.

I have chronic migraine with 80% of my days being attack days. Haven't found anything that helps yet. There's this book called "150 Ways to Stop Your Migraine Pain" and it basically lists 150 different methods that could potentially work to reduce migraines and links to scientific studies that back it up. It's the first thing that's given me hope because I realised that there's still quite a few drugs and methods I haven't tried (I've tried about 35 out of the 150 for context)

I couldn’t have described how I feel any better. My migraines are debilitating some days. Most of my family just looks at it like another overdramatic headache day. It’s dangerous for me to drive when I get them so I don’t commute to my college classes on days I get them, which impacts my schoolwork. I’ve tried so many medications I’m afraid to tell my neurologist when ANOTHER one didn’t work out, bc I’m afraid she’ll think I’m faking. I’ve given up hope that they’ll be gone like normal people, but instead it’s just me ending up in the ER a few times a month bc that’s the only thing that works.

I've had migraines for around the same amount of time as you (since I was about 6-8 and im 19 almost 20). I get to points where I am completely unable to function, have excruciating pain, throw up, and am unable to look at any light or hear any sounds without the pain worsening. (I also get other symptoms but I don't really remember them off the top of my head) I tried a lot of daily medication and rescue medication with none of it working. My neurologist has started botox injections on me. I only started them 4 days ago, but my daily headaches have subsided a bit already (botox injections are once every 3 months). It did take over a year to get to this point though and 4-6 different medications. But it may be worth a try. There are also monthly injections, but I sadly don't know the names of those medications.

I know how you feel. I have daily migraines and the doctors can't figure out why. My brother and sister both had them but grew out of them, and I've never been so lucky. No medications work for me, either. But my neurologist is absolutely useless. He's put me on antidepressants because he thinks my insomnia is causing them, which is fair enough, but each time I speak to him he only ups them even though nothing works and I've told him that. And I've never even met him! Nor has he requested any MRIs. His next plan for me is either a nerve block or Botox injections in the scalp apparently.

My psychiatrist did a gene test on me to see what meds would work the best, its just a Swab, but more for like mood stabilizers and stuff. I do botox and nurtec and it has helped the best, so far, this time. If you have any questions for me you can just message me anytime!!! Best of luck. I hate migraines w a passion!!!

Cymbalta and Depakote together have worked super well to lower my migraine days. I was getting them 3-4 times a week and the rest of the time was regular headaches, and I'm down to maybe 3-4 times a month, with regular headaches maybe 15 days out of the month

Botox actually worked for me in combination with Cymbalta. I recommend looking into both

Genetic so find out who it is that has them. Talk to them if you can. I changed my diet and it worked wonders. I gave up since I didn't have the support I needed. Prüvit ketones are amazing if you can get them and drink more water than you think you should. Still take the time for yourself in a dark room though. Also, in person therapy may be a better option. Screen time is sooo bad for migraines.

I feel you to my soul. I don't know which state you live in, but have you looked into getting a medical Marijuana card. I take a micro douse every day, and it helps a lot.