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New to the App and Looking for MS Warriors!

Blue_Star

711d

Hello! I’m new to this app and just set up my profile. I have MS and would love to connect with other warriors, especially given how complicated this disease is! I’m looking for some folks to talk about all of the struggles, the highs the lows and to vent. I’m also open to learning new things about it all! 🧡

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Multiple Sclerosis (MS)

Migraine

Generalized pain

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Top reply
    • Spoonie_In_Seattle

      709d

      Hello MS Warriors! I was DX in 2015 at the age of 45. Stopped my career and life for awhile, but slowly trying to start anew now. Would love to chat about highs and lows as well. I suffer mostly with neuropathic pain in my RT leg that prevents me from walking more than 20-40” at a time on good days. Other days I am down. Fatigue, migraines and spasticity in my leg and left shoulder also affected. I really focus on food as medicene and trying to get out and move every day and focusing on what I still CAN DO!

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    • Spoonie_In_Seattle

      709d

      Hello MS Warriors! I was DX in 2015 at the age of 45. Stopped my career and life for awhile, but slowly trying to start anew now. Would love to chat about highs and lows as well. I suffer mostly with neuropathic pain in my RT leg that prevents me from walking more than 20-40” at a time on good days. Other days I am down. Fatigue, migraines and spasticity in my leg and left shoulder also affected. I really focus on food as medicene and trying to get out and move every day and focusing on what I still CAN DO!

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      • Blue_Star

        709d

        @Spoonie_In_Seattle It’s hard to adjust to your new life, once you’ve been told you have MS. It sounds like you have a good attitude though, I work on that everyday. What does the spasticity feel like? I’ve read a lot about it, and wonder if that’s what some of my pain is, but I just don’t know.

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    • imag

      709d

      Welcome im 64 and it suxks.

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      • Blue_Star

        709d

        @imag Totally sucks!!!

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    • Shla

      709d

      I am almost 20 years in. I agree MS sucks

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      • Blue_Star

        709d

        @Shla It definitely sucks!

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    • Tasha22

      709d

      good afternoon yes my day has beentry good today.. my diagnosis is fairly new... I was diagnosed in December 2021. I have just been doing research and really trying to figure this whole diagnosis out. Truth be told I was living with some of the symptoms for years (over 10 years) but I had no clue until my entire left side stopped working and I had to go to the hospital.... the neurologist told me I have RRMS as well. I just wanted to be around like minded ppl who can relate to this journey. So glad I met you. Plz don't be a stranger😊

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      • Blue_Star

        709d

        @Tasha22 That is a new diagnosis. It’s a lot to take in, I know. Good for you, because doing your own research and educating and advocating for yourself is so important. I’m the same as you, I had MS symptoms for probably 10 years as well before diagnosis. I had no clue either! Optic Neuritis is what finally got me diagnosed. Having your entire left side stop working sounds really scary. I’m no expert (well, I kinda am, lol) but I am here to help any way I can, if you have ANY questions, I’m sure we can learn from each other. I’m glad I met you too 🤗

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    • Tasha22

      710d

      Hello 👋🏾 I'm new to the MS diagnosis as well. I'm looking for the same thing as you and wanted to introduce myself and say hello hope you are having a wonderful day.🤗

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      • Blue_Star

        710d

        @Tasha22 Hi! I’m so glad you reached out! I’m actually not super new to the diagnoses, just this Alike app. I was diagnosed with RRMS in 2018. It’s been a journey and it still is! How about you? 🤗

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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