Anina

183d

Has anyone with suspected endometriosis had ultrasound that came back clear but when laparoscopy was done you had endometriosis?

Generalized pain

Endometriosis

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  • hazyeclipse

    183d

    Endometriosis often doesn't show on ultrasounds, so that doesn't mean much

  • wise

    183d

    Yes, but that's what usually happens. Endometriosis doesn't typically show up on imaging, that's why it's only actually, concretely diagnosable via surgery

    • Anina

      183d

      just making sure I'm not going crazy

    • Anina

      183d

      everything came back normal not even cysts

      • wise

        183d

        yeah that's par for the course. I had a huge cyst on an ovary but that wasn't even taken into consideration when my gyno was telling me his reasoning for diagnosing me (because he wanted to give me the dx with or without surgery). ovarian cysts are only related to endometriosis if they're endometriomas, which you also can't know until you have surgery and they send a biopsy off to pathology

  • Waifu4laifu98

    182d

    Yes. I even had CT scans that came back clear but once they went in for surgery they found a golf ball sized cyst nobody knew was there.

    • Anina

      182d

      wow!! On the ovaries?

  • Olesya

    182d

    Endometriosis doesn't show on scans! You're not crazy. It took me almost 20 years to find an endo specialist who validated my concerns and started a treatment plan.

    • Anina

      181d

      wow I'm so sorry, 20 years is a long time trying to get help. I haven't actually been diagnosed yet but it's what I suspect given all my symptoms. But I've had 3 doctors tell me it's IBS. Even though I was Diagnosed with SIBO and treated twice with the antibiotics and still have stomach issues and bloating. Among so many other things.

  • 100Percent_K

    181d

    My scans were clean other than PCOS. I was early stage 3 in my last surgery.

  • Nanna

    177d

    Before my surgery, all my doctors would say “your labs are fine/normal” and “your scans are clean”. To which I would reply then why I am in pain! It took from the time I was 12 until I was 25 for someone ( a female GYN with Endo herself) to believe me. You are not crazy, you just have to advocate for your self.

  • Stitchgirl

    177d

    The only way yo diagnose endometriosis is with surgery. It does not show up on scans ever! I went through years and years of extreme pain and many doctors telling me everything was “fine.” Until one day a doctor found a very large cyst on one of my ovaries. (A cyst does not necessarily mean endometriosis). Due to the size and amount of pain I was in, my dr decided to do surgery to drain and remove the cyst. Initially, the plan was laparoscopy, however the cyst and ovary were both knotted up with endometrial tissue (thats endometriosis). So, the dr opened me up and removed it all including the ovary. However, even with all the endometrial tissue I had, nothing was ever found on the ultrasounds other than a cyst.

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