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Living with Chronic Pain: A Never-Ending Struggle

finislonely

573d

How do people cope with living with chronic pain? Everyday I think about how I'm gonna be in pain for the rest of my life, how I'll always be at appointments and getting procedures done in some attempt to make my pain better. I think about how tired I am of trying to make things better. There's no cure for my illness, there's no hope that the pain will ever fully stop. I think about dying all the time, it seems like the only way to get away from all the pain. How do I exist with this?

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Generalized pain

Suicidal ideation

Chronic Pain

Depression

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Top reply
    • Entropyluna

      571d

      Pain will always be a part of having chronic illnesses, but you are incredibly lucky to be dealing with this issue at this time in the world instead of 20 or 30 or 40 years ago. We're becoming a lot more aware of different disorders, as well as different ways to treat them. Communication is becoming infinitely more effective, so people that you've never met can share information on how to manage your condition. And thanks to social media, people are becoming more educated on how to spot a bad healthcare provider and how to get a good health care provider. Yes, pain is always going to be something that you deal with. But your pain will become manageable. You live in a society that openly talks about the pain of disabilities, and archaic medical treatments are being thrown out the window left and right. Things seem to only be getting better, and there's no reason that it won't for you as well. PS: I really hope that this is helpful and not just sounding overly optimistic šŸ˜…šŸ˜… I don't know you personally, so it's difficult for me to tell which tone I should be using.

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    • Entropyluna

      571d

      Pain will always be a part of having chronic illnesses, but you are incredibly lucky to be dealing with this issue at this time in the world instead of 20 or 30 or 40 years ago. We're becoming a lot more aware of different disorders, as well as different ways to treat them. Communication is becoming infinitely more effective, so people that you've never met can share information on how to manage your condition. And thanks to social media, people are becoming more educated on how to spot a bad healthcare provider and how to get a good health care provider. Yes, pain is always going to be something that you deal with. But your pain will become manageable. You live in a society that openly talks about the pain of disabilities, and archaic medical treatments are being thrown out the window left and right. Things seem to only be getting better, and there's no reason that it won't for you as well. PS: I really hope that this is helpful and not just sounding overly optimistic šŸ˜…šŸ˜… I don't know you personally, so it's difficult for me to tell which tone I should be using.

      1

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    • 100Percent_K

      572d

      The first thing I will say is you have EVERY right to grieve your body. We all go through it, you are absolutely not alone and we are here for you. Support groups can sometimes be helpful, other times not, thatā€™s really a personal thing. On the medical side of this, it takes a combination of providers to really get to a good place both mentally and physically with this disease. I really wish it wasnā€™t that way, but itā€™s such a complex issue. A good excision specialist, a pelvic pain management provider, a pelvic floor therapist, a chronic illness therapist, and possibly motility GI, urogyn, psychiatrist, etc. Itā€™s a lot, itā€™s a lot to keep up with and deal with. It can get very overwhelming and in the beginning it absolutely will feel that way. I was in that place for many many years, but better things are possible. There are providers out there who will help you get to a better place. You just need the ones who are willing to say you are not getting what you deserve, you deserve and can have better. I know itā€™s tough right now, but we are here to support you to that better place šŸ’›

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      • finislonely

        571d

        @100Percent_K Thank you, this is exactly what I needed to hear. I'm feeling a lot less overwhelmed today :)

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    • Barrfamily

      573d

      My gynecologist is referring me to pelvic therapy every thing Iā€™ve tried hasnā€™t worked

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      Reply

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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