Struggling with CFS for 35 years

a bear in hibernation is SUCH a good metaphor!! everyone is out and about living a whole life while i’m asleep

Definitely understand feeling invisible and isolated. I’m sorry that you’ve lost so much!

Oh I forgot personality, dependability, and youth.

I have lost almost everything. Career, dreams, security, life, love, friends, and family. If people think we are lazy, they never really knew us. I do feel like a Bear in hybernation. Life goes on.... While I sleep

Nobody understands if they don't have it. Iv'e been called lazy for years.

I'm going on 5 years and some people around me still don't understand. But we get it.. I'm having such a hard time letting go of the dreams I have..