Does anyone suffer from IIH?


Nausea and Vomiting

Pseudotumor Cerebri

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  • Jack2021


    Yes, I got my diagnosis a few years ago after long months of unbearable headaches, nausea and vomiting.

  • DisabledSocialist


    YES! Intracranial hypertension sucks. And that whooshing, waves sound that accompany what I call my "headbeat" have been making noise since I was a kid. I only decided this was an issue REQUIRING a doctor when my vision went fully double while driving. Good times. Better controlled now, but the white spots and fades are back. New floaters too, but not sure if those matter. I'm not thrilled with the idea of another lumbar puncture, so hopefully neuro can try an increased dose without tapping ne like a keg again.

  • Laniebird91


    Yes, I have it. I just got the diagnosis last month, but we suspected it for a couple years, and I think I’ve had it since around 2004 or so and just didn’t know. The headaches are awful. I had my first lumbar puncture to confirm the diagnosis and relieve the pressure, and now I’m on new medicine called Diamox. I hope it helps since lumbar punctures aren’t fun.

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