Gazella

56d

Does anyone suffer from IIH?

Headache

Nausea and Vomiting

Pseudotumor Cerebri

View all
  • Jack2021

    50d

    Yes, I got my diagnosis a few years ago after long months of unbearable headaches, nausea and vomiting.

  • DisabledSocialist

    48d

    YES! Intracranial hypertension sucks. And that whooshing, waves sound that accompany what I call my "headbeat" have been making noise since I was a kid. I only decided this was an issue REQUIRING a doctor when my vision went fully double while driving. Good times. Better controlled now, but the white spots and fades are back. New floaters too, but not sure if those matter. I'm not thrilled with the idea of another lumbar puncture, so hopefully neuro can try an increased dose without tapping ne like a keg again.

  • Laniebird91

    48d

    Yes, I have it. I just got the diagnosis last month, but we suspected it for a couple years, and I think I’ve had it since around 2004 or so and just didn’t know. The headaches are awful. I had my first lumbar puncture to confirm the diagnosis and relieve the pressure, and now I’m on new medicine called Diamox. I hope it helps since lumbar punctures aren’t fun.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.