Jennylee

208d

Hi! My question is do you have any pain in your muscles? Do you find most doctors just say it’s not in their scope of practice and there’s no treatment or cure?
How can I do therapy when I can hardly walk?
I do get down. How do you get yourself up and smiling everyday?

acute myalgia

Generalized pain

Inclusion body myositis

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  • Sunblock

    109d

    I have never had any pain in my muscles only the muscle weakness ! I was diagnosed back in 2010 and am still walking ! I did get AFOs which really help with walking

  • Auntchel

    101d

    AFOs?

  • Auntchel

    101d

    I've been going through a gammit of testing and have been told there's no cure or really much for treatment. I've just started physical therapy so I'll see if that helps. I don't have any pain, just weakness. Especially trouble walking up stairs and standing up out of a chair

    • Sunblock

      4d

      I have no pain ! Only muscle weakness! The AFOs are to help me walk faster and keep up with my kids and grandkids ❤️

      • Sunblock

        4d

        I do physical therapy and I also do Pilates I try to stay as active as I can !

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