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Finally Got a Diagnosis for My Chronic Symptoms!

CuppaTea

474d

After 8 years of bad symptoms and 21 years (my lifespan) of symptoms in general, I have finally got a diagnosis. Hypermobile Ehlers-Danlos Syndrome! Treating myself to a glass of prosecco!

5

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Ehlers-Danlos Syndrome (EDS)

Hypermobility Syndromes

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    • CuppaTea

      436d

      @A_Delicate_Flower when you go for the appointment, if you can, bring a relative if one has similar symptoms, I took my mum and that's how the Dr decided it was EDS not just hypermobility as EDS is hereditary.

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    • A_Delicate_Flower

      473d

      Congratulations! I still can't seem to get one! Several "suspect" but no one wants to diagnose it. I'm on a wait list for a Dr who only works with EDS/HSD in my area so hopefully one day I'll have a celebratory prosecco too!

      1

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      • CuppaTea

        436d

        @A_Delicate_Flower when you go for the appointment, if you can, bring a relative if one has similar symptoms, I took my mum and that's how the Dr decided it was EDS not just hypermobility as EDS is hereditary.

        1

        Reply
    • CuppaTea

      474d

      Thank you, I'm so excited just to have a diagnosis after all this time. I skipped out of the appointment xx

      1

      Reply
    • Vievie

      474d

      Ayeee! Definitely deserve that prosecco !

      1

      Reply
    • sandboxjoints

      474d

      hooray! glad you finally got it!

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      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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