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584d
tw for a bit of a rant and prolly some internalized ableism I hate being disabled. like dont get me wrong I doubt there's anyone that really WANTS to be disabled but it's just so .. exhausting and I feel so alone all the time. my tourettes and seizures took my senior year from me, my ability to drive, and now it's getting to the point where I can hardly work my part time job. my shifts aren't even four hours long and it's still getting to be too much for my legs. when will it end?? will it end up taking everything from me? I can't even really go to anyone in this house when I get to feeling like this and it makes me even more isolated than being trans. I don't have a good idea of what's happening to me and that's terrifying. anyone in my position would be terrified but whenever I voice that I'm just dismissed, or talked over, or worse yelled at. I am... so lonely in this journey. I feel like I've lost so much to my disabilities and my family doesn't seem to care. I feel like there's two options for how they react when we do figure out what's causing all this 1) they act like they never treated me like this and that they've always been supporting of me so that they can use my disabilities to make them look good 2) they keep acting like this but now just not denying that I'm disabled
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Cataplexy & Narcolepsy
Tourette Syndrome (TS)
Seizure
Depression
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506d
i really feel like getting on disability would be the best thing for your situation, i’m trying myself, i’m so sorry for your experiences, i unfortunately can relate so well ;-;
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508d
It sounds like youre in a very isolated position, and have felt that way in your family dynamic for a long time for several different reasons. It feels like your own body is your enemy sometimes when you're ill because it feels like it's in the way of your normal life. I think it's valid for you to be terrified and it's unfair for the people around you to tell you not to be upset when they aren't the ones having to experience it. The fear of your disease progression is a very real fear that I experience daily. Its scary to think about the future and how your life might change due to your disease, and thats hard to cope with mentally and you shouldnt be put down for that. This post was a couple months ago so I hope you're doing better.
@out_of_orexin things are a little more calm in terms of my family and how they treat me. I got the diagnosis of FND, though I'm not quite sure how accurate it is for a few reasons. Now that I have a diagnosis though, my mother specifically is suddenly very supportive of me and overall acting like she never put me down for this. We're hoping to get me into physical therapy soon and get my legs working correctly so that I don't have to quit my job, which I do rather like depending on who I'm working with
@wyvernprince even if it's sudden and a 360 change, im glad to hear that you are finally being treated with some support. I'm glad you have a job that you at least sort of like, and I hope that your physical therapy goes well!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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