Annikaz

273d

Hey, I’ve been on my medical journey since I was 11 (currently 20) and have had no success in finding out why I’m neutropenic. In the past 3 years I’ve had increasingly more symptoms. I have all the symptoms and most blood test results of a lupus diagnosis but my doctor won’t say I have it. I’m super frustrated and was wondering if anyone had a similar experience?

Neutropenia

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  • BrookeAlyse

    271d

    Hi! I’m so sorry you’ve been experiencing all of that! To clarify, you’re experiencing neutropenia symptoms but your doctor isn’t diagnosing you with it?

    • Annikaz

      271d

      no I was diagnosed with neutropenia when I was 11. I’m now 20 and I’m pretty positive I have lupus. I have all the symptoms and most blood tests results of lupus! But my doctor won’t diagnose me with lupus. My face and ears feel like they’re on fire daily

  • Mini5_1

    245d

    So sorry to hear this! I can relate to your frustration! 2 yrs ago I was experiencing severe cases of anemia and low platelets! 3 hematologist couldn’t figure out the cause😢 I diagnosed myself. I had a series of test done from bone marrow biopsy, CBC’s and colonoscopy! Id had enough!!!! After discussing my issues with my husband I ended up diagnosing myself! The cause was due to the neupogen injections! I stopped taking it back in Nov 2021 and now my blood counts are normal.. minus the neutrophil count. But I feel great! Hopefully you can find answers soon 🙏🏾🙏🏾

    • Annikaz

      245d

      thank you for your response! I don’t take neupogen as my bone marrow produces the neutrophils but once they leave the bone marrow my body destroys them for some reason😭I hate that we have to live like this

      • Mini5_1

        196d

        not sure where you live, I’m located in the Maryland/ DC area. I can recommend some folks if you live in or near this area if you like?

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