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806d
I’m currently trying to figure out the balance of advocating for myself and my health while also not coming across demanding to doctors. I have a strong suspicion that I have an autoimmune disorder but nobody supports me. I had blood work done but all that’s come back positive was the ANA test. I’m also a student making things harder. I just don’t know what my next steps should be. I have chronic pain and fatigue and I’ve tried everything to get better.
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Raynaud's Syndrome
Diffuse connective tissue disease
Generalized pain
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793d
Be demanding. I wasn’t insistent about my symptoms with my rheumatologist. I was in such pain and she would dismiss it and tell me to talk to my psychologist. Turns out she completely missed my correct diagnosis. I was getting worse by the day entirely bc she wasn’t listening and I wasn’t advocating for myself. Interestingly, a few months later this same doctor got angry at me for messaging her a question through my chart (I had strep and didn’t know if I should stop the immunosuppressant). She told me she wouldn’t be my doctor bc I asked too many questions! Doctors should welcome thoughtful questions if they don’t it’s a red flag. They’ll fail you later. This disease is too serious to not tell your docs just what’s going on.
803d
Hey there! Lifestyle, holistic, and functional clinics typically have physicians who are validating, helpful and if they don’t have answers will at least point you in a direction with resources🤗 what kind of care are you open to, and what have you tried?
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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