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426d
the genetics testing place refuses to let me make an appointment with them to test for EDS because to them the referral I got isn't good enough. And I only found out after a full month of waiting for a call or letter only to get neither, and 4 days of calling for hours every day because they refused to answer for those 4 days I tried to call š
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Chronic Pain
Ehlers-Danlos Syndrome (EDS)
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Thatās so awful Iām sorry! I hope that you can get the referral figured out soon, maybe even ask what they need it to say to be approved?
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424d
@kasket I asked and they wouldn't tell me, just said what I had wasn't good enough
422d
@ChronicOpossum What is it āthat you haveā that wasnāt good enough?
@kasket I second this I have had to ask for specifics several times before it was accepted.
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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