Preparing for EDS Testing: Seeking Advice and Support

Wanderinglumos

550d

My geneticist appointment for EDS testing got moved up to this Friday and now I’m trying to prepare for it. I would love to hear anyone’s experience with their testing/diagnosis. How should I prepare/what should I expect etc. My messages are opening if anyone wants to chat about it too. thanks!

Neck Pain

Postural Orthostatic Tachycardia Syndrome (POTS)

Joint pain

Ehlers-Danlos Syndrome (EDS)

View all

Top reply

Flower_Pup

550d

@Wanderinglumos thanks so much! That helps a lot.

1

Reply

Chat
Flower_Pup

550d

How did you find a geneticist to test for your EDS?

1

Reply

Chat
- Wanderinglumos
  
  550d
  
  @Flower_Pup my neurologist who treats my POTS actually referred me to one at the same hospital. She knew I had some joint pain and other symptoms so she said she’d refer me to check it out
  
  1
  
  Reply
  
  Chat
  - Flower_Pup
    
    550d
    
    @Wanderinglumos thanks so much! That helps a lot.
    
    1
    
    Reply
    
    Chat

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!

Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Preparing for EDS Testing: Seeking Advice and Support

Wanderinglumos

Top reply

Flower_Pup

Flower_Pup

Wanderinglumos

Flower_Pup

Alike health

Related Questions

Find people who are
experiencing a similar
medical reality

Preparing for EDS Testing: Seeking Advice and Support

Wanderinglumos

Top reply

Flower_Pup

Flower_Pup

Wanderinglumos

Flower_Pup

Alike health

Related Questions

Find people who areexperiencing a similarmedical reality

Share

Join the Alike community

View All

Find people who are
experiencing a similar
medical reality