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Living with Chronic Pain and an Ileostomy

Lala060797

506d

Hey y’all I’m LaLa 👋🏽 Im 25 years old. I suffer from RA, Fibromyalgia and CFS. Been dealing with constant pain for over a decade now. I also recently got an ileostomy that I am still getting used to.

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Rheumatoid Arthritis (RA)

Generalized pain

Stoma Revision

Prednisone

Fibromyalgia (FM)

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Top reply
    • Lala060797

      505d

      @spookyspoonie OMG! I would’ve never thought that there are people like me! I hope you don’t have to get an ileostomy! Are you on all of the same meds like me? Tell me everything lol

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    • spookyspoonie

      505d

      Hey lala, I'm Lio. I have these three and have been in pain 24/7 for a decade too. No stoma for me yet, but it is likely in my future 🤞. I'm down to talk if you want!

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      Reply
      • Lala060797

        505d

        @spookyspoonie OMG! I would’ve never thought that there are people like me! I hope you don’t have to get an ileostomy! Are you on all of the same meds like me? Tell me everything lol

        1

        Reply
        • spookyspoonie

          505d

          @Lala060797 we share a couple of meds! A lot of your meds are ones I have tried but had reactions to. My cfs causes a lot of med reactions so my primary inflammation/disease managing med is cannabis instead of biologics/metho/prednisone/etc

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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