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Akai

685d

What is your biggest setback with your diagnosis/diagnoses, and what do you do to help combat said setback?

Top reply
    • SunInAugust

      685d

      for me, I've been struggling with accepting an autism diagnosis because of a lot of internalized abilism. A lot of my life autism was used unkind around me to describe people who were 'off' but not in a good way. Its really changed my whole perspective of my life, my memories, and my identity. I dont get chronic migraines because I'm dehydrated or hungry....its sensory over stimulation. I dont get panic attacks at large busy grocery stores...I have meltdowns. I wasnt just 'raised by wolves'....I never naturally picked up on all the social cues others got naturally. I wasnt just super clumsy and bad at sports, i struggled to feel my body in space. I didn't just people watch and try to learn how to behave...I was studying to mask. I didn't just randomly always get asked what my accent was...I had a weird intonation to my voice or the 'autism accent'. I dont struggle so much with boundaries in my relationships...I feel an extreme intensity in relationships like I do in everything in life. I wasnt strongly smart but also super stupid...I was a twice exceptional student who needed accommodations as well as extra stimulation and challenges. HOWEVER. its also truly allowed me to listen to more and more disabled voices and really challenged internal ablism and made me a much better person. Its allowing me to show up for myself, ask for accommodations, allow my friends to help, conserve my energy. Its allowed me to rethink how to approach almost everything. Its allowed a few loved ones to see the most authentic me anyone has gotten to see - including myself. Its allowed me to slowly work on unlearning the identity so many have tried to give me. "You're just not the vibe, try and find friends elsewhere." "You talk too much" "you can be really annoying" "you're so difficult". No. I'm autistic. For better or worse I'm autistic.

    • SunInAugust

      685d

      for me, I've been struggling with accepting an autism diagnosis because of a lot of internalized abilism. A lot of my life autism was used unkind around me to describe people who were 'off' but not in a good way. Its really changed my whole perspective of my life, my memories, and my identity. I dont get chronic migraines because I'm dehydrated or hungry....its sensory over stimulation. I dont get panic attacks at large busy grocery stores...I have meltdowns. I wasnt just 'raised by wolves'....I never naturally picked up on all the social cues others got naturally. I wasnt just super clumsy and bad at sports, i struggled to feel my body in space. I didn't just people watch and try to learn how to behave...I was studying to mask. I didn't just randomly always get asked what my accent was...I had a weird intonation to my voice or the 'autism accent'. I dont struggle so much with boundaries in my relationships...I feel an extreme intensity in relationships like I do in everything in life. I wasnt strongly smart but also super stupid...I was a twice exceptional student who needed accommodations as well as extra stimulation and challenges. HOWEVER. its also truly allowed me to listen to more and more disabled voices and really challenged internal ablism and made me a much better person. Its allowing me to show up for myself, ask for accommodations, allow my friends to help, conserve my energy. Its allowed me to rethink how to approach almost everything. Its allowed a few loved ones to see the most authentic me anyone has gotten to see - including myself. Its allowed me to slowly work on unlearning the identity so many have tried to give me. "You're just not the vibe, try and find friends elsewhere." "You talk too much" "you can be really annoying" "you're so difficult". No. I'm autistic. For better or worse I'm autistic.

    • SunInAugust

      685d

      Biggest set back in getting a diagnosis or life after the diagnosis?

      • Akai

        685d

        @SunInAugust life after diagnosis, or just with the condition in and of itself

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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