morgan_disabled

77d

I hate my hEDS and just Eds in general. My legs have been hurting more and so have my back since July. My mom won’t listen and I can bearly survive school because of all the stairs. I want to use a mobility aid for it and I’m gonna try to tell her tommrow :)

Ehlers-Danlos Syndrome (EDS)

Crutches

Abdominal Distention

Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)

Wheelchairs

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  • sven2

    77d

    i know how this is😭 mine gets so bad sometimes i seriously can't go upstairs and i recently got a compression brace for my knees so there's some kind of support.

  • Snap.Crackel.Pop

    77d

    Does your school have an elevator? I had to use it on my bad days when I was in school

    • morgan_disabled

      77d

      yes but the elavator doesn’t even help

  • Mickey1210

    77d

    I’m sorry you’re going through this it’s rough. Maybe try looking up you tube videos of people who have Eds and use mobility aids to help you’re parents understand

  • Shy_Skittles

    77d

    I struggle with my Eds pain all of the time, I need some relief. I can’t work because of it.

  • MJ17

    74d

    I use platform crutches and AFO braces. It was hard to get my mom to understand because she doesn’t want to accept that I’m disabled. Just keep advocating for tourself

  • Atusin

    74d

    I hope the talk with her went well! there is no shame in using mobility aides.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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