I hate my hEDS and just Eds in general. My legs have been hurting more and so have my back since July. My mom won’t listen and I can bearly survive school because of all the stairs. I want to use a mobility aid for it and I’m gonna try to tell her tommrow :)
i know how this is😭 mine gets so bad sometimes i seriously can't go upstairs and i recently got a compression brace for my knees so there's some kind of support.
I’m sorry you’re going through this it’s rough. Maybe try looking up you tube videos of people who have Eds and use mobility aids to help you’re parents understand
I use platform crutches and AFO braces. It was hard to get my mom to understand because she doesn’t want to accept that I’m disabled. Just keep advocating for tourself
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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morgan_disabled
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I hate my hEDS and just Eds in general. My legs have been hurting more and so have my back since July. My mom won’t listen and I can bearly survive school because of all the stairs. I want to use a mobility aid for it and I’m gonna try to tell her tommrow :)
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Ehlers-Danlos Syndrome (EDS)
Crutches
Abdominal Distention
Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)
Wheelchairs
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision