InsectsNeedLoveToo

234d

how do you manage symptoms?

Midodrine

Nausea and Vomiting

Postural Orthostatic Tachycardia Syndrome (POTS)

Chest pain

Caffeine

View all
  • hazyeclipse

    234d

    Caffeine, midodrine, and a beta blocker. It's not perfect but it helps a tiny bit

    • InsectsNeedLoveToo

      234d

      I wish I could do caffeine but I am currently on a caffeine restriction :( All of the good migrane meds have caffeine

  • SlothFan26

    234d

    High salt diet, lots of water, and I take Corlanor

  • LeeannD

    233d

    I agree. High salt, water. I do coconut water for electrolytes. Everything else makes me sick. Hate the meds. If my legs allow it I'll do compression hose

  • QueenSmurf

    233d

    Caffine helps you? My cardiologist told me to lay off the caffeine. He said caffeine is a diuretic so it will dehydrate us more. I still drink caffeine but very little, especially when my POTS is flaring.

  • Leaf98

    231d

    Might be a me thing but oddly enough when I'm having a bad flare I will sit with my legs up against a wall and an ice pack on my chest 😆 that will usually help my nausea or any mild chest pain I have

    • LeeannD

      230d

      I put my legs up on the back of my couch all the time!

      • Leaf98

        230d

        omg it's the best 👌

  • wise

    231d

    Extra salt (esp salty snacks during an acute episode), an unbelievable amount of Gatorade, and a beta blocker and caffeine that are actually for unrelated conditions but they help with POTS too lol

  • Wondercell

    230d

    I noticed on your list you consume caffeine? That would be the first thing to go if you have pots. Managing your symptoms especially without medical care means listening to your body. If you're tired rest if you're dizzy sit down. Eat foods that are easy on the body which usually doesn't include anything fast or convenient you're going to have to possibly get rid of processed foods and eat more holistic or plant-based. The only reason for any of my Improvement is because I've been listening to my own body because I haven't found the right doctor yet.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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