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573d
Has anyone gotten diagnosed with EDS in Illinois, Indiana, Ohio, Kentucky, or Tennessee? Also, were you diagnosed under 18 or as an adult?
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Ehlers-Danlos Syndrome (EDS)
Edema & Anasarca
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474d
Got diagnosed in Indy at 22~ I was born with and had surgery at a young age for abducted thumb too tho and now that's actually considered an EDS type itself so I was kind of diagnosed as a child but not really lol
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I was diagnosed by my primary doctor at 19. I’m in Gastonia, NC.
In MN at age 16
480d
In TN as an Adult!
482d
Not in those states but I was 15/16 when I was diagnosed with hEDS in California. Wish I had more info elsewise.
555d
I was diagnosed in Kentucky at UK when I was 19!
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554d
@TotalSpaceCase wait who diagnosed you at UK? i’m from Lex but i’ve had bad luck with the doctors here
@Alux Dr. Carol with UK UHS. I was passed around by a bunch of UHS doctors for problems with my SI joints until I met with her and she diagnosed me.
Instead of investigating, doctors in Tennessee said that nothing was wrong with me, and my rheumatologist diagnosed me with fibromyalgia. I ended up moving and getting diagnosed in North Carolina.
556d
I was dx at Cincy Children’s by the geneticists in the connective tissue clinic. At that time, I was ~17. Feel free to DM me if you have any questions or want more in depth info! 😊
562d
Yes, Cincinnati childrens. I think I was about 14
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561d
@Abbe who did you see in Cinci Childrens? I go there for my PRS but i may need to seek them out for hEDS diagnosis too LOL
@Alux lmao I took so long to respond but I honestly don’t remember… I had one visit in the genetics department that diagnosed me. Rheumatology never treated me for my EDS. I saw one a handful of times for my RSD/CRPS
@Alux u don’t have to answer if u don’t want to but i was just wondering who in their rheumatology department was actually helpful for this lol
I was diagnosed at Erlanger Hospital in Chattanooga Tennessee! They are an amazing group and I was diagnosed when I was 12!! ❤️
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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